Hi Everyone. Hope you are all doing well and getting to grips with this new normal due to coronavirus. I have my 1st oncology appointment tomorrow over the telephone to discuss what's happening. I don't really know all that much. I had a ct scan in March so I think it will be to discuss that along with a treatment plan. Has anyone else been dealing with appointments over the phone? My scans came back with changes so I'm a little bit worried to be honest. I was with urology but my consultant explained that iv had to be moved to oncology now as its no longer urology even though the kidney cancer has spread to my lungs and is still kidbey cancer which iv found a bit confusing. My urologist wanted me to start Tki therapy ASAP after my radical nephrectomy back in Feb 2020. They also took my adrnal gland and tissue surrounding my kidney. I spoke to the specialist nurse who has said I may now not get the treatment due to the coronavirus and tki therapy compromising my immune system. I don't really get it as the consultant had advised this for best course of action. Il have to see what oncology advise tomorrow. Its just always a waiting game I suppose. Iv felt a bit down lately with everything that's going on and obviously now everyone in the world is worried about coronavirus and things but it seems a lot with having this too. We have been lucky so far as in still being able to get out for walks and things so I suppose that's a bonus and I have to look on the bright side of things. Sorry for going on. I think it's easier at times to put everything down on here than keeping it to myself.
Thank you. D xx
