Kidney cancer spread to lungs and brain

Hi ,

Its possible that immunotherapy might help with your mum's lung n brain mets. It wouldn't necessarily be in the same family as Pazopanib.

Can you help   or   or is yours in the same family as Pazopanib?

Thank you for your response Buttercup.

immunotherapy was the 1st suggested route for mum before they knew about the brain mets, so would be great to hear a good news story around this, assuming it’s what she gets offered as her next stage of treatment.

I had to have gamma knife first before they would do immunotherpy. Haven't had MRI scan on brain yet but all my dizziness and falling over have gone which would indicate that it's worked. 

Once that was done they started the immunotherapy. No problems with first two and then wow. Ended up in Weston Park as a result of the third. From my bloods and lung scan they say it is all under control. I still get the immunotherapy rash which comes and goes in all sorts of strange ways. But I look on it as my friend.

Unless something goes horribly wrong I will be scanned again at the end of May and next phase of treatment decided on. At the moment all is good and the immunotherapy has done it's bit. 

I'm keeping as active on lock down as I can. There is a bit of a blip in my steroid reduction but decided I'd rather reduce more slowly than have to have bloods done 3 times a week in the current climate. GP and local surgery have been fantastic, kind and caring and the doctor rings the oncologist if he thinks he is out of his depth. 

For me it all feels like good news. I did over 10000 steps round the garden and up and down the stairs yesterday. I wouldn't have been able to do that 4 months ago. 

Hi irishrambling,

Thank you for your response, your treatment sounds positive and well done for keeping active in these difficult times.

i haven’t heard of gamma knife, google here I come.....

Good luck with the scan and next stages of your treatment.

xx

Try also under " stereotactic surgery" and also in the group " ask a radiographer"

Thank you, understood now.  My mum has this on her original 3 Brain tumours, the consultant is now saying they won’t do it again. Still trying to understand why not, it was successful last time.

Forgot to say there's a maximum no of brain tumours they can use gamma knife with. Sorry.

Thank you buttercup, so I’m guessing 7 is too many and 3 was ok?

Probably x

Go back and ask again. My surgeon said they could do the Gamma knife every 3 months if necessary.