Ipi/nivolumab rash

FormerMember
FormerMember
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Has any one else has the ipi/nivoulmab rash. When I was hospitalisd for a very bad reaction to my 3rd dose, one of the things I had was a 97% body rash. Then it went. In the 3 and a half weeks I've been home it has come and gone intermittently. Not all over and not consistently. Once only on my left arm, another time only my knees, mostly my thighs. Has anyone else had this and when did it finally stop arriving and disappearing? It doesn't itch at all, which I know is really lucky. But has anybody else had this experience and how long did it go on for? 

  • FormerMember
    FormerMember

    I've had the rash since the second ipi/nevo dose , it seems to flare about a week later but it itches terrible, much worse at night . I have been on 3 week prednisone tapers which get rid of the rash but the itching remains. Taking 200mg of pregabalin and 50mg of bendadry at night to sleep but they say it will clear probably when I go on nivo alone. They gave me a topical Clobetasol spray to use for the rash and it seems to help , it was too extensive to use a cream

    Good Luck and hope this helps