Ultrasound showed complex cyst on left kidney

Hi , welcome to the community and this group in particular,tho  it's not the place you want to find yourself I'm sure. Sorry it's taken me a while to greet you, had a hospital appointment myself today.

Well, you say you've " frightened yourself to death" by looking on the internet - much of the stuff on there is outdated, especially re kidney cancer -  treatment for it has been developing at a rate of knots over the past few years. You sound like you already have a lot on your plate with your dad and husband, so I'm so glad you've reached out to us. 

Thare are many ppl in this group who can support you through this n help answer questions you may have. There's also the helpline open 8am to 8pm, 7 days/ week on 0808 808 0000 and you could have a Macmillan of Maggie's centre nearby ( see "in your area" or ask the helpline), where you can talk to someone face to face. Tho I appreciate that might be more difficult, being a carer.

Anyhow, we may well b jumping ahead of ourselves, as you've not yet had a diagnosis. I could slap you r GP, shrugging her shoulders n saying it's serious. You know that, that's why you're asking for more info!

Once you've see the urologist and have a treatment plan in place - if you need one, that is- things will feel s lot better.

Let us know how you get on at your appointment please. We're here for you,so do "talk" to us.

Big hugs,.Sue

Hi Buttercup01, you are so kind, thank you. 

I went to GP for bloods today and found out the lesion is 4.5cm x5.5cm lower back of left kidney, more information than I got from my doctor. Also found out I have a small amount of blood in urine and glycosides but don’t know what that means. 

Got a call from the hospital and they can see me Monday morning which is better than waiting a week. I’ve told my 4 kids ( all grown up, youngest is 17) that I’m having some tests but don’t want to scare them. 

it’s going to be a long weekend. 

Janet x

Good luck for Monday Janet

Sue

Hi,I’m from the bladder board but I wanted to wish you well for Monday.Love Jane 

Hi , I’m also from the bladder cancer board ...mainly!!!  It’s my husband with kidney cancer.... I don’t know much about KC but just wanted to add my husband had 2 massive cysts on his kidney together measured 30cm. The first urologist really scared us and that’s without a CT scan, the nice people on here put my mind at rest a bit by saying he wouldn’t know what was what without the scan and as it turns out they were right, it wasn’t as bad as he was saying, luckily he’s now under my urologist. To get to the point he had his kidney out with this 30cm thing and hasn’t looked back, it was cancer but all contained, we only got to speak to the urologist straight after the op and at the time it’s all a blur, he had two scans with just a letter saying all ok. He had his op Oct 18. Good luck x

Hi

So sorry you've found yourself here, while you have so much else on your plate in particular.

Hopefully you'll get lots of help and support here, we all know what you're going through and how frightening it can be. As buttercup01 says - pretty much everything you'll find about kidney cancer (if that's what it is) is out of date online, our treatments have developed so quickly and brilliantly over the last few years. What I held on to more than anything in the first stages was my urologist's absolute assertion that if a nephrectomy was deemed necessary (and for me it was) it can be an absolute cure. 

In tumour terms your cyst is still relatively small, so keep that in mind - and also, if by any chance it is cancer, that kidney cancers are typically slow growing, so don't panic that this thing could be running rampant while you wait, it won't be.

Hopefully you'll know a lot more after your appointment. Please do let us know how you get on, will be keeping fingers crossed for you.

Thank you to everyone who has taken the time to reply to me, it really means a lot to me. 

As if things couldn’t get any worse I’ve just spent 6 hours at Preston hospital with my dad who hasn’t been well and they have admitted him tonight. They said he has a rampaging infection In the tumour site and needs intervention. He is getting a full check up and having CT scan to check cancer hasn’t migrated anywhere else. 

It took my mind off my own worries for a while. That’s me making trips from Blackpool daily for a while. 

I think writing on here and reading your posts is going to help me immensely, I’m the type of person who likes lots of information ( retired teacher) and it’s nice to read about your experiences. So thank you for sharing and for supporting me, I hope whatever my diagnosis is I can help others too. 

Hi Janet

what is it about us teachers! I’m 66 and had a radical nephrectomy a year ago. The worst part for me was the lead up to the operation and the total lack of control I felt! I was still working part time but couldn’t function with fear and anxiety. I decided to get some control back by getting as fit as I could. My three adult sons walked mikes with me. This certainly helped my recovery from the operation.the operation is major but doable. I was back teaching part time in six weeks. Again the teacher in me, I needed to be as informed as possible and this site was a godsend. I kept a notebook and noted down my fears and feelings which also helped.  A year on I am feeling really well. I hope your dad is on the mend. My mum is 93 and I didn’t tell her about my kidney cancer and operation until it was all over! 

Hi ,

There is no need to feel a fake and you are more than welcome to join the community although we would rather you did not have to.  You mention wanting information and this site is good with the community being the best part of it.  However if you wanted specific information then the Kidney Cancer UK site is really informative.  If you haven't found it yet you can click here for a link to the site.

You mention that your Dad also has cancer but I see you have not joined any other groups on the site.  There is a Family and friends group click here and you could also join the skin cancer group click here if you wanted for more information and support.

If you are uncertain about anything then the Macmillan helpline are really helpful and informative.  They can offer emotional support and information but also practical information including finances and benefits.  They are on 0808 808 00 00 .

I hope the news regarding your dad is as positive as it can be and loo forward to talking to you again.

Wishing all the best to you and your family,

Gragon xx

Thanks @gragon for providing info I probably should have.

Sue