New here. Hi everyone.

FormerMember over 5 years ago

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47 subscribers
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Hi. Iv been reading through some of the posts and to be honest I feel a little better already. I think instead of googling in future il check in on here first with my questions. Iv just recently been diagnosed with kidney cancer on the 15th Jan this year. I received a letter with diagnosis ... 8 cm renal mass. Pulmonary module suspicious for metastatic disease. So iv had a bit of a wobble since getting the letter last week. In been for a pre op as I'm on the urgent list for radical nephrectomy by open surgery ASAP. I'm waiting for a phone call for surgery date which iv been told will be in the next couple of weeks max. I think it's hard to even say the c word to be honest but im trying to stay positive as I'm struggling with trying to comfort my immediate family whilst not letting my 2 youngest children know what's going on. My husband has been fantastic but I just feel so guilty for this happening to my family.

Thanks for letting me get this out D x

FormerMember over 5 years ago

Well that's a pretty shitty start to the year for you. So glad you've been able to find some positives here already and that you're going to be seen so quickly.

Google is hopeless and totally out of date for kidney cancer unless you know what you're looking for. I never used it, but my husband terrified himself in our early days, before he realised that our oncology team were actually our greatest allies. Unfortunately so did my son, which I've only just found out (he was 12 the first time and 14 the second) so that's worth thinking about - it's not just that adults that google xx

I didn't find this place (deliberately) until a year or so ago. I was so scared to read other people's sob stories - or so I thought. I came here to find out about travel insurance - and got side tracked when I realised I had something positive to say in the kidney group. Then instead of sob stories I heard positive stories and that was incredible.

We all have wobbles - this is a good place to have them. Just know that there is a huge amount of amazing work happening with our cancer right now - we're right at the forefront of new developments. We have a lot to be positive about.

I hope we can help with anything you might need.

FormerMember over 5 years ago in reply to FormerMember

Hi Jo300

Thank you.I think the positivity has helped so so much. Just to find a little common ground to help it sink in and understand a bit more.

Solidarity too!

I read something that made me laugh.... 'Google searches don't rival medical degrees!'

It's just natural I suppose to want to understand a bit more about things as it's so been so quick.

Thanks again. I appreciate your help.

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