Rampart Trial and Flu Vaccination

FormerMember
FormerMember
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Has/is anyone on this trial??

 I’m now ten weeks post surgery and still recovering from Sepsis, so it was touch and go wether or not I could do it.

 Luckily the wound is healing nicely and I went to the hospital yesterday, the Dr was pleased with the wound and gave me the go ahead.  I signed all the paperwork and had various bloods taken and an ECG.  Just waiting now for an appointment for a CT scan and if that’s clear, then within three weeks I will know which treatment arm I will be getting.

 I’m pretty apprehensive about it now, it all just seems so real.  Because I’ve had such a crappy time these last four months and could only focus on the Sepsis, I’ve not really given my kidney cancer diagnosis/ Nephrectomy much thought.  It’s just something that I’ve gone through because I’ve had to.  But now I’m starting to get over the Sepsis, it’s all become very, very real.

If anyone has any experience of this trial, please would you share it with me??

Another question is like to ask, are flu vaccinations recommended for people who have Kidney cancer??  I vaguely remember the surgeon telling me something about it, but I didn’t really take it in.

Thank you for any replies and sorry Neutral face for the long post!!

  • Re flu vaccinations, my GP recommended I have one every year

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Thank you Blush for your reply!!!!

  • Sorry no one's responded re Ramparts trial. Maybe u can b our trailblazer?!

    Meantime, try posting in "Ask.a  Nurse". Good luck!

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember

    Hi

    i had my kidney removed on 27/6 and going to hopefully sign up for the trial at Sheffield today..very nervous too..have you found out which arm you are on?

  • FormerMember
    FormerMember in reply to FormerMember

    Awww thank you for your reply!!!

    To date I don’t know what arm I’ve been allocated.  I’ve had the blood tests, ECG, signed the paperwork and have a CT scan next Thursday.  I then have to go back the following week for the scan results and if clear they will tell me which arm I am to receive.  If it’s one of the drugs, I’ve to go back the following day!!!

    I wish you all the very best of luck with your appointments today, please keep me posted on how you get on.

  • FormerMember
    FormerMember in reply to FormerMember

    Will do, where are you having it done? Mine is Weston park hospital

  • FormerMember
    FormerMember in reply to FormerMember

    Have you found any other blogs or groups who are on the Rampart trial?  I can’t seem to find much anywhere other than clinical stuff on line, which is all rather depressing !!

  • FormerMember
    FormerMember in reply to FormerMember

    Christie’s in Manchester!!

  • FormerMember
    FormerMember in reply to FormerMember

    That’s supposed to be one of the best I heard

    please keep in touch, I’m concerned about the side effects of the drugs, but still feel I have to go ahead and try something rather than do nothing

  • FormerMember
    FormerMember in reply to FormerMember

    A lot of people have told me that Christie’s is a very good hospital.  I’ve only been twice and the staff are lovely Blush 

    I’m like you, very apprehensive Grimacing about the whole thing.  Now it’s getting closer, the situation just seems very real.

     I too am worried about the side effects of the drugs, if that’s what I get.  I’ve been off work since April and I’m very worried about going back, especially if the side effects do kick in.

     I’m in agreement with you too, that it’s better to try something than do nothing, even if it doesn’t benefit me, it might benefit others in years to come!!! 

    Anyway, good luck Wink for today, let me know how you get on!!