I'm terrified

Hi Boogie Bay Cale. Im pretty new to the group too and Im sure someone will be along soon to help allay your fears a little. I can totally understand how you are feeling at the moment, I am just the same although things seem to be taking so much time to get sorted here. I have to lose my kidney too and have been referred to another hospital for an appointment with a consultant there. Thats not till the 2nd Sept so have been sitting it out for what will have been 7 weeks of anxiousness. It is an unreal feeling and like you I am putting on a brave face for family and friends when inside I want to scream. Ive been trying my best to distract myself xx Everyone here has been so friendly and helpful and are good listeners. Youve found the right place for help even though non of us really want to be here . Love and hugs xx

Thank you Ethelmay. I'm so sorry it's taking too much time for you, but weirdly I'd like just a little more time to get used to the idea before they whip me in and whip it out.  And that in itself sounds daft, because I don't want this thing inside of me (which I have named Melvyn, because I once knew a Melvyn who was really nice, so I thought if I gave it a name it wouldn't be so scary). My consultant seems a nice reasonable sort, so I don't think they are acting in haste. It's just the past few years for me and my family haven't exactly been a picnic, and now this... Daylight hours are relatively ok. Like you I distract myself, and for the most part that works. It's those hours when you have to face 'you' that are hard, and that's when I start to think and the terror takes over. Sleep is a really difficult thing to do, as my brain just doesn't stop. But you're right, though no one wants to be here, there are a lot of inspirational people to listen to, and it helps to talk here, because I can't bother my family with how I feel, how it feels, not fair on them. Thank you for listening, much love to you x   

Hi Boogie BC, it’s my husband who has KC not me but I just wanted to say I felt just the same as you’re  feeling while we were waiting just over 3 months for his operation, once the kidney was out it seemed a great weight was lifted. His was also stage 2 and doing very well, doesn’t need any treatment and CT scan in a years time. Get it out and you’re on the road to recovery. Good luck xx

Hi Boogie BC, I had my right kidney out 14 years ago next month. Had to wait from being told end  June to mid-Sept. (Don't ask!) Like suecc says, once it's out it "seemed like a great weight was lifted"

Have a look at the thread Ethelmay started called Anxiety buster for some ideas as to distracting yourself

Liking the name change Buttercup x

Hi Boogie BC..love that you've called it Melvyn and it's a friendly name lol x. Mine's called John Henry. My Dad used to call every guy John Henry when refering to them whether he knew their correct name or not they were always John Henry ( the plumber, electrician, barber, my brother and even my son when he was little ) so it's sort of endearing lol. Yes, the whirlwind you're in...well, I was in that whirlwind at the beginning and part of me wishes it could've continued while I was in a sort of shock unreality to the point of having the op so it would all be over by now. The other part of me, at first, sort of welcomed the 'reprieve ' if you could call it that. It gave me chance to calm my nerves a bit at the beginning but they are starting to build up again now. But ...( oooo my old school English teacher would go mad at starting a sentence with 'But' or 'And' lol ) so in defiance I shall start it with ...And but I have felt a bit less apprehensive today for some reason, had a good day. Love and hugs xx

Hi I'm new here it's been inspiring reading the posts just a quick question i had my right kidney removed on the 4th of July nearly 7 weeks ago now I have not yet had a date to go for a check up and have not had pathology results x

Hi I would chase the appointment, perhaps phone your nurse specialist that you should have been allocated. I saw my surgeon for histology results two weeks after my operation. Seven weeks is far too long to wait 

Hi booked 

I've just had my right kidney removed 7 weeks ago now I had all the fears you have now I'm back to normal now doing all the activities i did before I was relieved to have it out. As I'm 66 now my kidney function was only 60% after my op they said my left kidney had taken a dip in function but will recover i have yet to have my post op check up and pathology on the tumour x

Hi Jane thank you for your reply reply i expected to get a letter but none ha s come i will ring them on Monday morning were your histology results the same as they told you pre op ?