Bosiank III cyst 50/50

Hi thee mum2000, I’m also new to the kidney group, it’s my husband with kidney cancer. Let me start at the beginning it may help you a bit. July last year he noticed a lump at the side of his tummy, went to the doctor who thought it was a cyst, sent him for ultrasound and CT, he went for the ultrasound and they found 2 what they thought looked like cysts, both about 14cm so very big, he then went for CT and they said the same, the letter Said Bosniak cysts 3 or 4. I did the same as you and got the same results most likely to be cancer. My husband was booked in to have his kidney out hopefully by key hole, first op was cancelled, second op was cancelled as no HD beds, third time lucky but it was open surgery as it was so big, The op was 30 Oct last year, so about 3 months from seeing the doctor. Pathology report says grade 2. and stage pt2b Papillary RCC which in its self is a rare kidney cancer, so it was cancer, he had his first CT scan in March and we got results back in May saying there’s a 6mm nodule on a vein where kidney was and to have another CT scan July, I’m really worried about this 6mm nodule. 

As I said I don’t know much about Kidney cancer but I can’t see why their not doing something about your cyst, I’d make a fuss knowing what I know now., maybe someone with more experience than me can help, Good luck X

Thanks for the reply How awful for you both.  Sorry I’m not sure what you mean by pt2bpapillary RCC but it doesn’t sound good. Has your husband had any after treatment like chemo?

I really don’t understand why the doctors leave these Bosniak 3 cyst and just monitor. When I heard the word  malignant, my first words were cut out get rid, easy!! Even on the few webpages I have found says  the same “remove the cyst”. I have been to see GP with flank and back pain and all they have said it’s only a cyst it can’t cause pain.

Thought I was going mad and over reacting so in a weird way you have made me feel a little better Someone that understands at last

Hi and sorry, maybe I should have explained in more depth. As I said I’m very new to kidney cancer but I’m a kinda expert in bladder cancer as that’s what I’ve had for over 6 years and both seem to have very different treatments. Ok so my husband has papillary type 1 renal cell carcinoma cancer, the grade is 2 and the stage is pt2b which is stage 2, the pt2b means it’s more than 10cm.  Pathology said the 30cm cystic tumer came out with clear margins. Papillary is a sub type of renal cell, not too clued up on it but I know that not as many people are diagnosed with papillary and not as much treatment, He’s having no treatment as kidney came out with clear margins and we was hoping that that was that, but now a 6mm nodule is showing up so another CT scan to see what it’s doing, I haven’t a clue what will happen if it does grow. I’ve heard chemos not so good with kidney cancer, so what treatment is given I don’t know.

I was hoping someone with more experience than me would answer you. I would defo ask why their just leaving it if they believe it to be malignant. Please come back and let me know how you get on. Xx

We Hiya. I’m clueless really. Mine only measures 1.6cm on the lower lope of right kidney. The hospital docs don’t seem to have time to explain things when I go. I did watch a video today that said they have a lot of success treaty kidneys but it didn’t say which type. The site was called mayo  

Off to sunny Skeg for the weekend time relax before Monday  And please keep me update with your husband  xx

Mum2000, do you live near sunny!!! Skegness? , we live 20 miles away. At the moment we’re in sunny Majorca with rubbish WiFi lol,x Enjoy Skeg and all it offers xx

We had a lovely weekend, mostly spent in Burgh Le Marsh.

I had my Ct scan Monday. But all didn’t go to plan. The paper work for the kidney scan hadn’t been done, so the kidney wasn’t done, just the lungs. I phoned to make an appointment for another scan, but with no success.

SueCC We don’t live near Skegness, but we have gone nearly everyweek since I was a kid, so feels like home. I have a good network of friends there as well. Looking at the Skegness Standard tonight there are a lot of floods from all the rain, so if I was you stay in Majorca until the weekend hehe

 So what happens now, I hope you can get another scan. Wishing you all the best xx

1. Hi SueCC Been thinking how’s your husband doing. You did say he had an appointment in July. How did he get on? I have ct on the 11th

Hi mum2000, yes he has an appointment for a CT scan on the 12th July so  Friday and a day after yours, I’m wondering who’ll get their results first, last one he had in March took 9 weeks, 9 weeks of worry, this one will be even worse as we know there was something there but hoping it’s gone. I also have a cystoscope on Wednesday the 10th, same hospital ...so anxiety is sky high. 

I don’t really want to scare you but when I googled bosnick cysts 3/4 it comes out that their mostly always cancerous. Is it the kidneys your having scan this time? If not I would really want to know what their doing about it, yours isn’t very big so maybe that’s why. As I said I don’t really know much about KC, I was hoping someone else may have been on to give you some info. 

Please keep in touch and hope the scan turns out to be good for both you and my husband xx

Hi SueCC The Bosniak 3 thing is worrying, it showed up on a Ct scan last September that I had done for fluid on the right lung. This is the fourth scan I will have had for the Kidney. I can’t really understand the Doctor’s thinking. My next appointment will be on the 2nd August, so I hope that enough time for the scan to be properly looked at. 

A cystoscope, I also hope you are ok? x