Clear Cell Renal Cell Carcinoma treatment

Hi I'm sorry I can't help with the first part of your question but I'm sure someone will be along soon who can

i have had genetic testing due to my mum,my brother and myself having had kidney cancer.I accessed this via my GP. I went for genetic testing at the request of my daughters who initially refused but then changed their minds.We had to go to Manchester as only certain hospitals do this.

it involved a lot of questions and a blood test.You also have to have a form signed by anyone involved eg your uncle.In my case I had to give permission on behalf of my mum who passed away and a form was sent to my brother.This allows them to access case notes and any tissue samples.They told me that although there are three in my family there was no genetic connection and I'm an enigma which I found funny.My mothers kidney cancer was rare transitional cell where my brother and I are clear cell.They recommended my daughters and my brothers son have a scan once a year as a precaution.I hope all goes well for your dad 

Cruton 

I’m new to all of this.. last week I went to the hospital with breathing difficulties which turned out to be pneumonia, while having a cat scan on chest they noticed a lump other three tests later and more blood than I’m sure necessary taken from me , I was informed I have renal cell carcinoma, it’s 6cm so a stage one. The doctors were so optimistic and said some positive things, but I’ve been reading and reading and I rarely find anything positive about this. Your dad is so brave for going through all this. I’m struggling to keep things together and I’ve only know under a week, any advice!?

Thank you for your reply Cruton that was really helpful, when I spoke to the macmillan helpline they suggested genetic counselling and the consultant at the hospital said although kidney cancer isn't known to have huge genetic links there's a lot of different types of cancers in my family and they suggested to speak to the GP and ask for genetic counselling. The GP however was quite abrupt and short and said they will only refer to genetic counselling with a letter from dads consultant saying what they want checked. :\ was rather strange tbh, so I think thats the end of that? Thank you for taking the time to help me, I hope your treatment is going well and the precautionary scans for your family members sounds like a good positive x

thank you very much for your post hun, I'm really sorry it's taken me a little while to respond my dad was hospitalised at the Christie for a few weeks with hypercalcemia and I'm only just managing to catch up again now. I can imagine you are completely overwhelmed right now, and although it's absolutely rubbish being told you have kidney cancer, I am so so glad they have found it at stage 1 for you, there are lots of treatment options from what I have read up on it since finding out about dads. a lot of the statistics around kidney cancer are out of date and people are surviving so much longer now, at stage one they will be looking to cure and that's wonderful x My dad knows his is terminal, but you know, my dad is as stubborn as they come and I think that has been the best thing for him, hes determined to fight and to keep going and to give it his all and thats what is seeing him through. He said cancer can kiss his backside lol, he knows it's a fight hes not going to win :( but hes going to give it his best shot anyway. You have got this hun, I know it's scary and horrible and not fair, but I'm going to send some stubbornness your way and hope they get on with your treatment as soon as they possibly can x