Kidney Cancer- immunotherapy

Hello. So sorry to hear about your Dad. My husband  has stage 4 metastatic kidney cancer and has had 3 courses of Immunotherapy. So far no side effects but the procedure itself can be uncomfortable (the Camilla anyway). Good luck, if you have any questions please ask xx

*canula* sorry!! 

Thanks for your reply Hun! Appreciate it! Dads having the cannula/ drip too? How's your husband doing, Has he had any previous treatments?? Is he able to do things after the treatment? How do you find it it when he having treatment? Sorry so many questions lol-  I don't talk to many people about!  Thank you for relying appreciate it xx

Hello again! No worries, am very happy to answer questions wherever I can. Dom has had one kidney removed, but the cancer has spread to his lungs. The tumours are dotted around and he has had some TKI tablets to try and make them smaller. They worked for a while but the tumours are getting bigger again now hence the move to Immunotherapy. The treatment itself takes about 2 and a half hours. When it's going on he seems to be ok - it's in the chemo outpatients ward and he sits and rests while it's going on. So far he's been able to drive home from the hospital and carry on as normal. It's been pretty OK so far, fingers crossed. Good luck! Xxxx

How's your husband doing? Is the immunotherapy still going ok? Dad had his first round this week!

Xx

Hi,

I'm on immunotherapy at the moment and i find it much better than being on Sutent, which i found grim. The main side effect for me is tiredness, but i can live with that. I drive to and from my fornightly treatments without a problem. My only concern is that I have now had six rounds and if anything the pain from my tumours is increasing.

Wishing you the best of luck.

Darroch

Hi Thank you for your reply, it means a lot. I haven't spoken or met anyone who has had immunotherapy so Im kind of searching for clues and answers, and they are hard to find- so I am very grateful for your response.

Sorry to hear you are still in pain, I took my dad for his first round on Tuesday. it was a different experience for us as previously he was on student and pazopanib- both v grim!!

Dad is exhausted at mo so it wasn't surprising that on the day and the day after Dad was pretty poor, bad colouring, bad back and no energy, plus freezing, but strangely the last few days he has a bit more colour and more energy, - have you experienced this?? Does the therapy give a boost of energy?? The thing it reminded me of when my grandad had blood transfusions and for the first few days after the transfusion he had a bit more energy then this would wear off?

Dad has been living with this cancer for 16 year but things have changed in the last few months, he has lost significant amounts of weight, and is unable to do a lot dirive, cook etc..

Hes Ok if he's sitting downs and can sometime go for a little walk.

Anyway bit of a ramble-

Thanks again or you reply

x

I think you'll find that your Dad will suffer the side effects of Sutent etc for some time, but these will eventually wear off. My experience of immunotherapy is that it's massively better and if it works, miraculous. I'm on Nivolumab and the side effects are minimal compared to those horrible tablets, which I was on for two years.

Keep your chin up and think positively. The latest advances in medicine are quite  remarkable.

Warmest regards,

Darroch

Hi

Sorry to hear about your Dad. I have been on immunotherapy for 9 months with minor side effects. My cancer is in my pancreas metastasis from renal cancer. At the moment my cancer is stable. I would happily continue with the immunotherapy. 
good luck to you both.

lynsired