Hello!
I am almost done with my chemotherapy. I have three treatments left and currently doing Nivo-AVD.
I am currently struggling with lower back pain when standing or walking for too long. I am assuming this is because of weight gain. My oncologist won’t really recommend anything to help. I also get bad leg cramps, my legs are so tight from chemotherapy so walking distances makes me so nervous. I am going to a baseball game in May (donated tickets from Dana Farber) and it is in a suite so I can be comfortable. I’m just nervous about these symptoms while there since they happen a lot. I just want to have fun.
In addition, I am also dealing with INSANE bloating and trapped gas under my left rib cage. I use Gas-X but sometimes it doesn’t work. Is there something else that can be prescribed?
Are there any other tips or tricks I can do to help with these symptoms? I am more concerned about the bloating and gas after I eat food. It ends up being extremely painful and I can never get comfortable when it happens.
Hi lindseyH and a warm welcome to this corner of the Community although I am sorry to see you joining us.
I am Mike and I help out around our various Lymphoma groups. I don’t have Hodgkin's Lymphoma but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
I see you have already been using out Cancer Nurse Team area on the site…. I do hope you found them supportive.
I am going to a baseball game in May (donated tickets from Dana Farber) and it is in a suite so I can be comfortable
Based on the above I am assuming that you are in the USA…… as The Macmillan Online Community is a UK charity a very high percentage of group members are treated in our National Health Service and I do find when talking with folks outwith the UK there are at times significant differences in some approaches.
From my long experience Lower back pain, tight legs, muscle pain…… were easily connected to lack of exercise resulting in muscle mass loss….. it’s a vicious circle the less you do the worse these problems can get.
We have these signs everywhere in our Heamatology unit……
…… and from my experience this us ever so true.
I ended up in bed for about 3 weeks during my second Allo (donor) Stem Cell Transplant….. I was a month away from my 60th birthday then but when I left the SCT unit it was in a wheelchair and I had the body of a 90 year old….. it took 4 months physiotherapy to get me walking again and about 2 years before I could say I was not in any pain.
I have no experience of bloating and trapped gas so that is a question you need to put to your clinical team ((hugs))
