Does anyone have reassuring stories of having an infection that didn't respond quickly to IV antibiotics? My boy has been on IV antibiotics for 36 hours and his temperature has just spiked again so they are doing another blood culture. Should I be worried it could be sepsis? His neutrophils were high yesterday at 14 but normal today at 3.8 so still there. His haemoglobin has also dipped below 90 for the first time.
It's such a relentless worry. Trying not to panic as he's in hospital but hard.
Hi again Worrymum sorry to hear this but unfortunately this happens a lot.
A reduced immune system and an infection are not good partners…… and moving an infection can take time and a lot of IV antibiotics.
Over my years I have been treated for Pneumonia 3 times and Neutropenic Sepsis 2 times and once both at the same time…..
I have also had infections that were never identified….. most times it took a good week of IV antibiotics to shift these.
He will get there….. the medics will keep a good eye on him ((hugs))
I have to say that the journey is in someways harder for those looking on than for those in the bed….. patents are passengers.
You may find it helpful to talk with other caregivers….
Lymphoma Action run a number of zoom groups for caregivers every month…… a great chance to compare notes with others
Just check this link >> Support Platforms
During the challenging infection times in hospital my temperature was all over the place for the whole week…… it took a good 4-5 days to come down….. I was at 40.5 for a good period of time…… but we got it under control.
You will be surprised with regards to the groups…… as you are actually going to find there are far more positive stories than negative stories and you will get lots of encouragement… this is Lymphoma we are dealing with……. compared to many other cancer types thus is very treatable with great results…
