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Hi A long time since I was on the forums here. This might be a long post ! I was first diagnosed with HPV related cancer at the base of my tongue in 2018 and given the all clear in 2019 after chemo and radiotherapy. In 2023 a small ulcer onto side of...
Late effects that you need to be aware of That RT can cause hypothyroidism so you should have thyroid function monitored regularly That RT can accelerate atheroma in the carotid arteries increasing risk of stroke so a Carotid Doppler might not be...
I can still only manage to eat some veg soup and cuppa soup ..tiny peas etc I can manage slowly and with water beside me as my tongue still gets very dry and food sticks to it like velcro..I have a spray and water with me constantly...But I still get...
Hi all I got overwhelmed with emotion when given my husband's list of upcoming appointments for CRT this morning at his mask moulding and CT appointment. Has anyone else felt like this? I suddenly felt like we have lost control of our lives. Like...
Firstly apologies in advance as I seem like I only post on here when I have a new 'problem'. Just wondering if this was quite a common thing, or something I should maybe think about getting checked out. Just over a year since remission confirmed and...
Today I went through the first stage of tests to see if I can go on a new gene therapy trial which might help my saliva glands to become active again. Just to explain my background briefly: 3.5 years ago I was diagnosed with left tonsil cancer with...
I am interested to hear how long people have had to wait for/at their booked RT appointments. By that, I mean any/the delay.
My treat was in 2014 for tumor in my sublingual salivary gland. Had the neck dissection and forearm free flap package followed by 6 weeks of RT. I blogged through that if it’s any help to anyone. So where are we now ( if you’re a fan of a particular...
Hi all We have had numerous discussions with now 5 different people in the team including the S&L, oncologist, radiographer, and today a call back from the senior oncologist. They are adamant that Ade will not require a feeding tube of any sort and...
Hello. My husband has been diagnosed with orophangeal cancer, after having tongue cancer two years ago. Surgery is not an option and neither is radiotherapy as it's in the same place. He's been offered palliative immunotherapy on it's own or with a new...
