Drugs trial decisions

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Hello.  My husband has been diagnosed with orophangeal cancer, after having tongue cancer two years ago.  Surgery is not an option and neither is radiotherapy as it's in the same place.  He's been offered palliative immunotherapy on it's own or with a new drug trial.

Here's the quandary...immunotherapy can start next week on it's own.  With the drugs trial, after various tests, it wouldn't start until after Christmas sometime, and then he has a two in three chance of receiving the drug vs a placebo.

Would you start Immuno now, or wait and do it with the trial in potentially 6 weeks? He could get two cycles in in that time.

I'd love your thoughts,

Thanks

  • Definitely the latter. I don’t think six weeks would make that much difference. I would chance getting the vaccine? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks - We're not sure how fast things grow...it's all terrifying. 

  • I think maybe it’s a question for his team. BTW. So sorry that the cancer is back. We have members here who have done very well on it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi, I am on the immunotherapy drug trail on its own as did not get selected for the vaccine trail, I have received 10 sessions of the trial and been told that my last CT Scan shows the tumour is not so aggressive now, I had cancer at base of my tounge 2020, Radiotherpy and chemotherapy got rid of that but cancer came back in my lymph nodes in my neck and could not have radiotherapy on my neck, the trail is worth a go , the side effects arnt to bad, good luck

  • Thanks Neil, that’s good to know. Just a little side question…do you get travel expenses/organised travel when on your trial?