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Phone call from the MacMillan nurse this morning to confirm my bronchoscopy from last week turned out all clear (just need to get another x-ray in 6 months) so I am officially now in remission Strange mix of emotions. After bursting into tears right...
Hi everyone My mum (62) was diagnosed with Stage 4 Hypopharyngeal cancer back in August. She was due to have a total laryngectomy in early October but unfortunately, when a tracheostomy was put in place in September to help with her breathing due to...
Hi everyone, Just had my weekly review with Dr , and she is very happy with my weight ,only lost just over 1 kg so far , been on tube feeds for the last week. Pain has ramped up considerably, so I asked for more relief ,she's quite confident that...
Hello All, Let me start by saying that I am from the US and I have yet to find an online community as supportive and friendly as this one. I was so impressed I decided to join. I hope my geographical location doesn’t prevent me from being a member of...
Hi all, I finished my RT for tongue and lymph node cancer on 20 September and I’m still not eating food due to a very painful tongue. I can have soup and custard but they still hurt my tongue. Has anyone else still had pain after so long? Thanks and...
Hello All, I have (had) a mucoepidermoid carcinoma, T4a, it had invaded the bone of my hard palate, it's a recurrence from 3 years ago, when I had two surgery to remove it. Anyway, it came back, and in August I had a partial maxillectomy, a radial free...
Hi All, I did briefly write an introduction to my situation when I was diagnosed beginning of the year, however I'm not too sure where that piece has ended up! Anyway.... I finished my treatment on 28th April this year for Tongue Cancer. (I opted...
Being measured for mask tomorrow. Had 4 wisdom teeth removed- not sure what to expect from Chemo/radiotherapy
Hello, I am new to this group but would like any help on peoples experience of the outcomes for a laryngectomy on people aged over 80. My mother is very scared at the prospect of surgery. She has finished a course of radiotherapy that was unsuccessful...
