Hi everyone,
Just had my weekly review with Dr , and she is very happy with my weight ,only lost just over 1 kg so far , been on tube feeds for the last week.
Pain has ramped up considerably, so I asked for more relief ,she's quite confident that I don't need morphine patches at moment ,but has upped my pregabalin and gave me oxcodone liquid for break through pain ,which I really do need now as pain is a constant. She will revise my meds again on Monday to see how I got on.
I have dietician coming tomorrow as I'm starting to use a pump for feed ,and she needs to show me how to set it up. I can't fit 6 bolus feeds in in a day without feeling sick.
And I do need to up my Laxido!!
Anyone else been on a similar regime ?
Mark ...
Hi. I think there were quite a few of us on opioid patches which are fentanyl. I’m sure PFJTHS was
I had morphine. Fentanyl I think is more powerful.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi Mark
Pump feeding overnight is the way to go, frees up the day for other activities, bit of a pain sleeping with the set-up....my wife scarpered to the spare bedroom . ..make sure you have spare Y-junctions...they can become brittle with use.
Laxido and morphine is fun, 3 days bunged up then 3 days turbocharged...a science lesson.
Peter
Yes Peter ,it's going to be a learning curve with the laxido !!
I took one night and morning. You soon know if you are taking too much. Too little is much much worse by all accounts.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
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