Hi again I've reached the dizzying six week mark, and looking back I've come a fair way, but there's still a long way to go. The looking back helps me a lot. Since my last update (at 3 weeks) I had an SLT/dietician review on the phone and they made...
Hi all I'm post treatment by 2 years but lately been having horrific headaches that make me feel like my head has been sawn in half . I am under Maxfax and was given a mouthguard for grinding which I have stopped using as the pain from that was horrific...
Hello everyone, This is the first discussion I have posted. I was diagnosed with tonsil cancer over 4years ago, radiotherapy for 7 weeks which destroyed my saliva gland. I’m still without saliva and sometimes I can taste my food other times not and...
Hi Guys got an email today from MacMillan asking what worries me most? easy answer; cancer returning, there being no treatment and leaving my lovely family without me Ive got a two year review coming up next week and am a year clear of a neck dissection...
Hi. Radiotherapy finished in June, I'm back at work since middle of August. My thyroid cancer journey started in March 2022. At the moment all treatment is done, will have a PET scan next month to check if the treatment worked. My oncologist...
Hi all. Had final confirmation this morning regarding PET scan report. The faint metabolic activity in the cervical lymph node is not concerning. SUV is 1.5 so they were happy to tell me that I’m in remission. 6 weekly follow ups for the foreseeable...
Hi all. Had 33 sessions of external beam radiotherapy that finished on 12th of June. I think I will be told off by some of you (and rightly so),as again I want all to be perfect in short space of time that passes since I've finished the treatment...
I’ve just been to collect a prescription for duraphat toothpaste and the pharmacy wants to charge me £55 they said this is because it was a private prescription ( not with a nhs dentist) can anyone help or give me info on wether this is something I need...
Hi all Saw ENT consultant last week the day after PET scan. She had the images but no formal report. She was confident that I’d had a full metabolic response to treatment and no evidence of disease. I’ve received the formal report via letter copied...
Hey everyone. I find myself in some not-so-fun situations lately; so, just doing my best to get through! I just passed the three year mark since finishing chemoradiation for base of tongue cancer (right, right lymph node involvement). I have my next...
