I am fed up.

Hi Izzy1984, welcome again to the forum by the sounds of it, unfortunately with head and neck cancer this is a big problem and it takes quite a while to recover from the way your body has been battered by RT after 6 years I have both fry mouth and days of high production of saliva, there are medicines that can help with the saliva I take Buscopan for helping reduction so speak with your medical team or GP for help, also regular nebulising will help thin the saliva and mucus and as for dry mouth I suggest that you look at the Charity Swallows as they have some products that help and freebies so you can try they have monthly online meetings so are very active :

https://theswallows.org.uk/support/resources/

It does get better, honestly but it really does take a lot of adjustment, I still cannot leave without a bottle of water !

Take care, Tony

Izzy1984 said:

Should I expect other side effects, that are gone, to come back and bite me in the bum?

I can only speak for myself in that I wasn’t comfortable with myself for six months when I was finally happy to abandon my water bottle. It was a year before I was consistently happy with my taste. I still chew gum a lot of the time to keep my mouth moist 

Things will go up and down. 

I am over 2 1/2 years since CRT and things still change for me.  Mostly I have now learned to manage the changes and thus have a good, but quite different, quality of life. 

In the early stages of recovery if can be frustrating with 2 steps forward and then a giant step back.  Easy to say but difficult to do - try to be kind to yourself and have patience.  You will get there but it is a marathon rather than a sprint. 

I’m 6 weeks post and I was doing great with my mouth then this last 7 days it’s been incredibly dry. It has put me off wanting to eat anything 

It's not easy Izzy... but it will get better... just takes time... patience and strength needed...we all find it from somewhere... take care.

Hi Izzy1984 you’ve answered your own question. It does take time often in firsts year 2 steps back and One forward. You’ll have good days  and. Bad.  For many of us dry mouth is there  in the background. I’m 8 years post chemo radiotherapy usually pretty ok but the last 2 days my food has tasted over salty like the early days and my tongue is burning. I’m used to these blips at start of week I tried to introduce some spice into a dish . I made a stroganoff literally and if a queter of a teaspoon of paprika and I’m paying the price.  ( I have no tolerance for spicy foods any more ii am the exception on that one most people eventually can ) so now my taste buds have to settle down for dry mouth in day I use orbit sugar free gum and nightie a xyimelt.

takes time you’ll get there. 
Hazel xx