Today was not a good day

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Almost a week since l completed my radio therapy,  its slow, its sore and christ its frustrating. So yesterday I had the feeling something was brewing, just after lunch ( tasty nutritious shake) I began to feel as if the lid was about to come off. I call it Fin E.

Anyone reading this that has anything to do with the Tornado aircraft will immediately know what I mean. For those who don't the Tornado GR1/4 has a fuel tank in the fin 440kg to be exact, when full you get a Fin F light on the refuel panel  ie FULL   when empty you get a Fin E light ie Empty.

So yesterday I started to drain the tank, and this morning I hit Fin E, with a vengeance. Dropped the car off at the garage and strolled home in the rain (how refreshing that was) . I walked through the door and bang Fin E, I was OK until I saw my Wife and then the flood gates burst (don't consider myself to be an emotional person) but I held my wife like it was my last. We both had a good shed, I think the last few months just peaked and today was Fin E day. Must admit I feel a bit more on the level now, the feeling of uselessness has passed a bit, ready to face the next few weeks I think. 

I said to my Sister today, I look more and more like our Dad, which is good except I I look like my Dad when he'd had cancer ( throat) so not by best comparison, but that's life I guess. 

So a bump on the path, not sure if anyone else has been here, but this is my story and my journey. I hope this helps someone on

their journey . None of us do this journey alone or can we. We draw from those around us being strong takes more than just the individual,  I think I need to remember that.

  • You are not alone on this subject , Fortunately I had heard of macmillan but without this site I honestly don't think I would have made it through. My self and a few others were invited to the cancer centre and the general consensus was they were giving us information we needed before and during our treatment 

  • You are so right. If only the medical teams would tell us about the support services in place instead of us having to hunt around for ourselves. Maybe some do so no judgement.

    Hi Lyn. I must say I was drip fed information and pointed to Maggie’s. I  did have a F2F holistic  assessment from MacMillan before treatment and looking back it was an excellent effort at offering to care for my mental wellbeing as well as the physical. I have never been a great one to share my feelings and I didn’t recognise it for what it was and dismissed it after only two sessions.  I stumbled across the forum from one of their  leaflets. I was so glad I did. I found it easier to do any sharing via a keyboard and had so much help from others. I could be honest here without collapsing in floods of tears. Facing any number of professionals I only once shed any tears and then was so ashamed of my lack of control I never did it again in public. I couldn’t even cry on my husband’s shoulder. How crazy is that? This group here saved my sanity. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani

    Yes I am like you. After crying on my surgeon's shoulder I felt so ashamed and told myself to pull myself together. Not that that helped at all really. Pulling yourself together is not a really healthy way to come to terms with what is happening with your life.

    I definitely found the same as you with the forum. I have shed a few tears when reading some of the stories I read on the forum but it is all anonymous so I no one knows. With the forum I can mull things over before posting anything and don't have to necessarily make any response unlike being in person with someone.

    I always thank the day I stumbled on the forum and found all you fantastic people.

    Lyn

    x

    Sophie66

  • Hi Minmax

    Just to clarify. I live in Australia so have no experience of the NHS. We have the Cancer Council here. I did try ringing the nurse once for some advice when I was about to have a second lot of radiotherapy which I was extremely apprehensive about after having already experienced one lot.She was helpful in a clinical way but not in an emotional supportive way which was what I needed. Since then they have started a Peer Support programme where they match up people with similar cancers and you can get support via the phone. In fact I am in the process of training to be a mentor. However they still don't seem to often flag the support you can get before or after you have had an op. or treatment.

    I'm trying to figure out how to try and improve this but it is a bit of a dilemma. At least now I am a volunteer with the Cancer Council I might be able to have some influence but not sure how to start at the moment.

    Lyn

    Sophie66

  • Hi Sophie66 .  I found I did not get any support really to be honest . I was told over the phone I had cancer and that was after dragging it out of the nurse after every test etc . My daughter suggested going to see someone for help which I did and that helped enormously. You cannot put a price on your mental health and I was going sometimes twice a week at the beginning.  It really does help to talk even if it's not looking good. I think lack of knowledge and understanding does not help either and a bit more factual information would help. All the Best Minmax

  • Former Member
    Former Member in reply to Minmax

    Hi Minmax

    2017...I had a malignant tumour removed from my colon ....4 hour surgery.... little or no support  after leaving hospital...my mental health(and physical) suffered ...still have issues due to that episode...

    2023 tonsil cancer diagnosed, better prepared this time but still a massive shock, support from oncology and Macmillan has been great....up to a point...now I feel cut adrift....initially my health centre seemed interested in how things were going both physically and mentally but no follow up since.

    I realise that no spare cash is available to NHS cancer services but investing in decent aftercare would possibly pay for itself....arrange a monthly phone call to patients just to reassure and give a little pep talk.

    This forum is a Godsend to cancer sufferers.

    Peter

  • Hi Peter E  I just felt a total  mess and use to walk everyday for my sanity and health . I paid to see someone which really helped and was a God send to be honest. In fairness to the NHS they have saved my life and on the fourth time now. I have had a really good cancer nurse which has helped me also. I think we have to be a bit pro active and try nipping things in the bud before they appear is my advice to anyone . This forum is defo a God send . All the Best Regards Minmax