Today was not a good day

Hi we all have had those days I liken it to hitting the wall as in a marathon. I had spells of radiation fatigue I learnt you can’t fight it. I listened to my body and became queen of the Power Nap 20 mins sorted me. Friends used to ask when I went to their houses not did I want a cuppa it was did I want to use a bedroom. These are all blips our bodies go to hell and back  it’s a marathon not a sprint remember that. 
hugs Hazel 

BL755 said:

one of us do this journey alone or can we. We draw from those around us being strong takes more than just the individual,  I think I need to remember that.

Read this. It might help

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

Cant help with the Tornado analogy save to say they used to fly over my house regularly but they’ve been replaced by F35s

BL755 well done . Your words do ring a bell but sometimes even though the tank is  showing empty you have to keep going. No surrender ., storm make people stronger and don't last forever. I can highly recommend walking for a speedy recovery. I am on my third campaign fighting cancer and don't think I would be here without  this website . All the Best Regards Minmax

Hi BL755

That feeling of uselessness really resonates with me. I went through exactly the same thing while I was recovering from my first cancer op. My husband had taken over from me babysitting our first grandchild who was 4 at the time. She bonded so much with him and started to ignore me. I felt 'what good am I to anyone' at that point. I didn't seem to be able to do much as I was so tired all the time and I got rather down at that point. However the good news is that my energy came back and I was able to dip my toe back into life again. I was able to start interacting with my granddaughter again and things got better and better. There were quite a few tears from me at that point but thankfully it didn't last.

The encouragement of my 3 daughters and my husband definitely made a difference.

The bumps definitely become less.

Best wishes for your ongoing recovery.

Lyn

Hi! So many times I felt the way you did yesterday.  The side effects of radiotherapy hit me from end of week one, I was not expecting it as the doctors had told me I would not feel unwell until probably the third week...I thought oh oh....this is going to be a real whirlwind (that is the only plane I know of...sorry...). I was so unwell during treatment, sick all the time, unable to eat, in pain...etc I was determined that I would make it but so many times my mind was saying "yes you can do it" but my body  was saying "really? Do you really believe this? ". I wanted to appear strong in front of my children and my partner because I did not want them to worry and I wanted them to believe I would be ok. I needed this positivity around me. But so many times I felt I was running on an empty tank and would crash soon. So many tears.   After 35 sessions of RT I was ready to hibernate and bought a onesie and a fluffy blanket as I knew that I would just sleep and sleep...I thought I would then wake up and be able to live my life as before my cancer....oh oh...wrong my mouth ulcers had somehow built a special bond with me and would not go ...I did try to explain to them that maybe we could just be friends or I could start charging rent...but oh no they felt quite at home and remained with me for another 3 months. Finally they got bored and decided to leave.  I progressively learnt to be kinder to myself and not expect to run a marathon, It was ok to take baby steps. My treatment finished 18 months ago and I love life. Eating is still tricky as no saliva and my throat is still swollen but I explore new flavours and create new recipes with the food I can have. I have become self-employed as this makes things easier for me to manage my fatigue that sometimes still comes and visits me. 

I am pleased that you popped in to tell us how you felt as this is a great community and we all understand what you are going through. There is so much warmth and kindness on here .The good news is it does get better and there is some light at the end of the tunnel. Keep going and be good to yourself. 

I send you loads of love and positive vibes hoping that you are having a better day. 

Take care.

Fab1

Hi, first week post radiation hit me like a tone of bricks but it got easier from week 2. I also had a meltdown and it hurt too much to cry. Hang in there. It gets easier day by day. Wonderful forum here. I’ve just discovered it. 

DesR said:

Wonderful forum here. I’ve just discovered it. 

Hi and welcome from me. Your posts have been really reassuring. You’ve made a pretty good recovery so far. 

Hi BL755

T2N1M0 tonsil cancer HPV+ Chemoradio finished June 2023.

Know the feeling too well....had days where I just wanted to crawl away and hide....had to put a brave face on things for my wife's sake....she was having a mighty rough time looking after me....

Happily things do greatly improve ...a few stumbles along the way....but we were told treatment was going to be a challenge....it certainly was/is.

Take care and best of luck

Peter

Thank you and I hope I can help contribute. I’ve had nobody to turn to. It’s been a lonely journey 

DesR said:

Thank you and I hope I can help contribute. I’ve had nobody to turn to. It’s been a lonely journey 

Oh that’s so awful. It’s a terrible road to travel on your own. Stay with us. You’ve a way to go yet. There’s lots of friendly helpful people here.