Today was not a good day

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Almost a week since l completed my radio therapy,  its slow, its sore and christ its frustrating. So yesterday I had the feeling something was brewing, just after lunch ( tasty nutritious shake) I began to feel as if the lid was about to come off. I call it Fin E.

Anyone reading this that has anything to do with the Tornado aircraft will immediately know what I mean. For those who don't the Tornado GR1/4 has a fuel tank in the fin 440kg to be exact, when full you get a Fin F light on the refuel panel  ie FULL   when empty you get a Fin E light ie Empty.

So yesterday I started to drain the tank, and this morning I hit Fin E, with a vengeance. Dropped the car off at the garage and strolled home in the rain (how refreshing that was) . I walked through the door and bang Fin E, I was OK until I saw my Wife and then the flood gates burst (don't consider myself to be an emotional person) but I held my wife like it was my last. We both had a good shed, I think the last few months just peaked and today was Fin E day. Must admit I feel a bit more on the level now, the feeling of uselessness has passed a bit, ready to face the next few weeks I think. 

I said to my Sister today, I look more and more like our Dad, which is good except I I look like my Dad when he'd had cancer ( throat) so not by best comparison, but that's life I guess. 

So a bump on the path, not sure if anyone else has been here, but this is my story and my journey. I hope this helps someone on

their journey . None of us do this journey alone or can we. We draw from those around us being strong takes more than just the individual,  I think I need to remember that.

  • Hi DesRoss,

    I went through it all by myself too and it's been very hard but keep going.We all have inner strength that seems to come from somewhere.I've had some terrible dark days but if I can help you in anyway let me know.

    Turi

  • Hi DesRoss I went through it all before more or less on my own as split from partner of 30 years , But it has made me stronger as I am on my third attempt to stop this cancer which has now spread from neck  to liver and lungs. I try and keep upbeat about it pity the oncologist  assistant isn't as enthusiast as she  mentioned months not years if this chemo doesn't work. All the best stay strong Regards Minmax 

  • Good morning Turi. 
    it’s amazing the inner strength we have.  I’ve noticed it as well and so grateful for it. You’re a star. Thank you for reaching out 

  • So glad you’re here so we can support you 

  • Thank you. I’m grateful to be here. My wonderful nurse put me onto this forum this week. Now 7 weeks post radiation I look back and am grateful I can help others 

  • Hi DesRoss Thank you  so much . This site has literally been a life saver for me and I always recommend it to anybody in need .  People here have given me inspiration and  strength to carry on a journey of recovery . I have been really blessed staying alive and healthy so far and ideally plan to carry on that way if at all possible.  I am hoping God just has a wicked sense of humour lol. All the best to everyone here  

  • My wonderful nurse put me onto this forum this week.

    That’s so good of her. It would be even better if she pointed her patients here right from the start

    Give her a huge thanks from all of us here. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • We’re always happy to help. 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Dani

    You are so right. If only the medical teams would tell us about the support services in place instead of us having to hunt around for ourselves. Maybe some do so no judgement. However I was never given any advice about where I could get support after any of my ops.and treatment even when I broke down in front of my surgeon and had a good cry. I just stumbled across the Macmillan forum when searching the internet for some info. It was a great day when I found this forum.

    It it is so great having the support and understanding of others who have experienced something similar to myself.

    Lyn

    Sophie66

  • Gosh I’m so sad to read this. I was in Ninewells in Dundee and was given so much information and I’m sure all the forums were mentioned. At the time I just wanted to digest this myself so didn’t seek any help. Hindsight I should have read all the bumph .