Sore !

I was the same. You are in what I found to be the toughest time. The fatigue was a whole new level. I was told to sleep for the 3 weeks after treatment. That is more or less what I did. The improvements will slowly creep up on you. 

3 weeks !  I don’t think I could sleep for 3 weeks but I know what you mean , I’m no use just sitting here most of the time , I do make myself do little bits though , the not being able to eat is getting me down too , most drinks sting my mouth now xx

Aly14 said:

most drinks sting my mouth now

I was the same so I used my NG tube till swallowing wasn't a fight. 

Swallowing is fine , it’s just when it hits my soft pallet it’s stings , coffee wasn’t so bad today though xx

Hi Aly. It’s s slow process but step back snd think what your body had gone through.  Like most of us you didn’t know you had csncer to start with . Then you hear the dreaded C word your world falls apart you go through brutal treatment and it’s not over the day you have your last treatment. It continued for s few weeks  this time next year it will be a blip in your life but for now all you can do is listen to your body. Honestly if you fight the fatigue the fatigue will win every time. 
bsby steps got me through it it will get you. 
Hazel 

it’s a marathon not a sprint just remember our cancer is eminently curable keep that thought. 
Hazel x

Food passing over your soft palate is part of swallowing. It hurts which is why you're not eating. Use your tube for a week then try again?

I used my tube for the first  2 weeks made sure I could swallow sufficiently wek 3 nd I coujd swallow the ensures so that was the end of tube feeding for me it gave my mouth I also had soft palate cancer spread as well as tonsil anterior wall and 7 lymph nodes plus an extra week of treatment. As Dani says give your mouth a rest. 
if yiu can open your mouth wide enough see if your uvula is still there ? The dangly bit at back mine melted due to treatment thst shies hiw brutal it is. 
Hazel x

Thanks Hazel I think it was because I wasn’t expecting this at all , I wasn’t told , I do take naps , I think I’m trying to run before I can walk but I hate the constant discomfort in my mouth , I am taking my meds now maybe not as much as I should but none of them seem to touch the pain & discomfort xx

RadioactiveRaz said:

if yiu can open your mouth wide enough see if your uvula is still there ? The dangly bit at back mine melted due to treatment thst shies hiw brutal it is. 

I have total mucosal loss over half the back of my tongue. No papillae at all. Completely smooth. The RT has wrecked my tongue to the depth of half a cm so it's no surprise the uvula (part of the soft palate) takes a hit.

The good thing about it is I can open my mouth a little bit better now , I remember asking the SALT is it still there as I remember you saying yours went , she said why does it look different I said I don’t know as I can’t see , I’m going to have a little look tomorrow xx