Hi everyone hope your all doing well haven’t been on here for some time, so I had my 3 month scan today wasn’t really the result we wanted but still hoping it’s ok, the pet scan came back with hot spot at primary sight they put camera down and it was showing a white patch the doctor said it could still be inflamed from the radiotherapy so the are doing a MRI tomorrow and the team will discuss and maybe another biopsy, I’m really nervous now about the treatment hasn’t worked absolutely crapping it to be honest, I’m just hoping it’s inflamed, will keep you all updated
Kenny- Luggs
Exactly the same happened to me. I’d rather have a timely biopsy than wait another three months for a re scan. I was fine and so will you be I’m sure xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
That’s super news Kenny…everything crossed for you
Hi everyone so I had biopsy under anaesthetic done Monday all went well I will get the results on 5 July hopefully it’ll be ok, I could of had appointment on 28th June but I’m on holiday I know the waiting is pants but I’d rather know when I’m back than when I’m away
kenny
Fingers crossed.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Kenny fingers x you’ll be fine. Enjoy your holiday.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Everyone hope your all keeping well, so update as promised, got my biopsy results back today I had two and the doctor told me they are cancer clear should be happy with that and briefly I was, he put camera down and said he’s not happy with what he’s seen, the last doctor who done that on my previous appointment was happy in what he saw said it’s just scar tissue, and the biopsy will determine if it’s cancer free, so as you can imagine I’m feeling pretty pissed off and I let them know, he told me the consultant wants to see me at the UCH in a couple of weeks says he might want to do another biopsy himself, I know they need to be 100% sure but I’m 6 months down the line after treatment and I should know by now one way or another surely? so I’m feeling really fed up I’ve complained to my Macmillan nurse and I’m waiting for him to get back to me
kenny
Oh Kenny I feel for you I genuinely do. Just keep positive like you say they need to be 1oo%. Here fir yiu when you need to rant. Wish you were seeing same person every time. Sometimes the left and right hand don’t agree hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Kenny. Treatment failure of the primary site is extremely rare so hold onto that. Your problem is two consultants. I’d be kissed off too. I’ve seen the same one from dot.
If the biopsy shows nothing then there is nothing. Hope your Macmillan nurse sorts it out for you. Xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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