My 3 month scan today

Hi Kenny well done getting this far hot spots are common after treatment. No what you want tiniest. I will tag Dani it  ut happened to her Beesuit am sure she will pop on soon  

Hiw are you apart from that news please don’t stress it’s extremely rare for our treatment to fail in the first year 

hugs Hazel x

Hi ya Hazel, I’ve been doing ok apart from today it’s knocked me for 6 to be honest, had a poxy cold that hasn’t helped but over that now, eating ok and drinking and back at work so all good thanks x

Hi Kenny. Sorry I took so long to reply after hazel tagged me. Hypo pharyngeal SCC is what MikeO had and the treatment worked for him. 
Hotspots are really common. It’s why a lot of clinics are doing PET much later than the traditional 12 weeks

I had mine at 16 and there was an avid area at the primary site.

Of course you are bound to think the cancer is still there but my oncologist sat me down and said that treatment failure is really extraordinarily rare that early. Radiotherapy is hugely aggressive and causes a lot of damage.
I had a biopsy a week after my results and everything was clear. 
I think the further tests are good practice. Better looking than guessing. Fingers crossed. And a big hug. 

Hi Dani lovely to hear from you, I am worried now though, he told me that all the lymph nodes were clear so that was good, just the primary site when he put the camera down I could see a white patch is that how yours was? he tried to reassure me that it could still be where it’s burnt and inflamed my Maccmilan nurse did mention to me that the longer you wait for pet scan better the results can be makes sense really, I’ve got my MRI tomorrow morning they said they will discuss all the results and see if I need a biopsy 

Kenny x

Yes. Mine was like that. Some centres make you wait for a repeat PET six months later. Thank heavens mine did a biopsy. I don’t know if I could have waited another six months. 
I had an MRI too which was clear. 

Thanks Dani, let’s hope my MRI tomorrow morning will be clear as well, and hopefully they’ll do a biopsy, waiting another 6 months for a pet would drive me insane mind you I think I’m half way there anyway

kenny xx

Yep. It drives us mad. We want everything done yesterday. I’m still here and kicking theee tears later so will you be. Just with a head of grey hair! 

I Kenny well done at being back at work , try not to stress the scan was done early mine was 18 weeks after.We look forward to your  next update.

Hugs Hazel x. 

Thanks Hazel I’ll certainly keep you all updated in the coming weeks and  your all such a comfort I ain’t feeling to bad now xx

Hi Kenny we all help each other. Csnt best personal experience.

Hazel x