Hi all,
I was diagnosed with Stage 3 Base of Tongue Cancer (Squamous Cell Carcinoma P16+) recently. Completed my CT Simulation last week with mask build. Looking to start 35 cycles of Radiotherapy and 6 consecutive Chemo sessions late next week.
I am undergoing treatment in Thailand, as that is where I live and don't always get all the right information. They ask me if I have any questions but unless you know what to ask, it is quite hard.
A few questions for the experienced in here:
1. What pain relief regimen are you on? I am on Doucetz, which is 325mg paracetamol & 37.5 mg of Tramadol. 2 tablets every 4 hours. The pain is really tough, especially at the 3.5-hour mark. Does anyone have a name I can ask for?
2. I have also been given a thick mouthwash called lidocaine hydrochloride, which numbs the mouth for about 5 to 10 minutes.
3. Any other meds/liquids I should be requesting once I start Radiotherapy?
4. Many forums I have read say that Radiotherapy is Ok initially (7 to 14 days) and then gets progressively worse until around 6 weeks after the last session. Does anyone have any other info to add?
Thanks to Dani, who picked up my initial post in the general intro forum and signposted me here.
Thank you in advance for your support.
Taff
Oramorph, MST (morphine slow release tablets) and Difflam mouth rinse help with pain....others have used more heavy duty pain meds.
Caphosol
helps with mucositis often caused by chemotherapy or radiation therapy contains sodium bicarbonate and calcium carbonate, which help neutralize acid and promote healing in the mucous membranes.
2-3 weeks into Chemoradio and things start to go south for many, loss of taste and appetite, a feeding tube is advisable, cream for head and neck tenderness should be sourced, Epimax was standard for most in my radiotherapy unit.
Michael
Thanks, Michael, greatly appreciated.
Forgot about the constipation associated with pain meds...Laxido or similar will be needed, and probably something for oral thrush, Nystan, I had 3 episodes of thrush....treatment and recovery can be tough...good luck
Michael
Hi Taff
swallow and jaw exercises will aid recovery. Ask the hospital to give you some. Laxido or movicol for constipation. My blog link below will show yih what I went through and yes after treatment finished it continues to work the first 2 weeks I didn’t a lot of time in bed.
later food was fuel was my motto I got very out the pleasure in eating for a good year. Now I can eat most things diary from spicy my mouth can’t tolerate it. But I’m the odd ball in that respect
best wishes
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007