Tismus/lockjaw

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Hi, I'm new to this group but having been living (and enjoying living!) with the long term side effects of chemo/radiotherapy treatment I received back in 2017. My main problem at the moment is the tismus, I can only open my mouth the width of 2 fingers (just!) It's hard to eat in sufficient quantities and my eating process is so slow it's embarrassing especially when in company and most of my plate ends up cold. My mouth sensitivity is also excruciating so have real anxiety about eating out especially when on holiday. Oh and while I'm having a moan my inner/middle ear is persistently playing up and I have oral thrush! Any words of advice, wisdom and support most welcome. Mand

Beesuit 30 days ago

What have you tried to improve your trismus? I know you are discharged from routine review but you still remain a patient of the hospital that treated you so my advice would be to get back to them. There is a device called a Therabite that may help you.

Regarding the thrush, how are you dealing with oral care?

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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FormerMember 30 days ago

Trismus....Possibly email your CNS contact for advice?

Oral thrush issue could be dealt with by your GP....make an appointment or email a photo of the infected area to GP...prescription should be forthcoming.

Peter

RadioactiveRaz 29 days ago

Bi As the others have said we are always under the care of our hospital. I was told 2 years ago when I was 5 years post contact my cns or consultant s medical secretary. Re oral thrush that’s more than likely being caused by mouth being hard to open I also use a water pick to help clear any debris in my teeth. You can get them from Amazon use on the lowest setting. I was told to do mouth and swallow exercise daily for life and touch wood I’m ok mouth and swallow wise

Hazsl x

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

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Rachael S 29 days ago

Hi,

Have you not been given a Therabite for the trismus? It's a bit of a contraption but it does seem to work!

Am perturbed to here you still have it! And about the inner ear thing. Mine's been playing up, I had been hoping there was something they could do about it!!!

Rachael x

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