Hi, I'm new to this group but having been living (and enjoying living!) with the long term side effects of chemo/radiotherapy treatment I received back in 2017. My main problem at the moment is the tismus, I can only open my mouth the width of 2 fingers (just!) It's hard to eat in sufficient quantities and my eating process is so slow it's embarrassing especially when in company and most of my plate ends up cold. My mouth sensitivity is also excruciating so have real anxiety about eating out especially when on holiday. Oh and while I'm having a moan my inner/middle ear is persistently playing up and I have oral thrush! Any words of advice, wisdom and support most welcome. Mand
Hi
What have you tried to improve your trismus? I know you are discharged from routine review but you still remain a patient of the hospital that treated you so my advice would be to get back to them. There is a device called a Therabite that may help you.
Regarding the thrush, how are you dealing with oral care?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
