Hi, first time here, although my partner finished radiotherapy for tonsil cancer two days ago. Because of the ulcers on his tongue he is limited to well blended thin food. He mainly has porridge and soup supplemented by protein drinks. I'm putting fortified milk and protein powder in his food, but because of his dry mouth the dairy content turns the food to gloop in his mouth so he leaves some of it.. Also he has to spray with xylocaine before he can eat and the protein drinks and any dairy get through the lidocaine. Any ideas for alternatives please. He's discounted rice pudding, yogurt and basically anything dairy.
Hi
T2N1M0 HPV16+ tonsil cancer chemoradio finished June 2023
I was unable to take any solids or liquids until 12 or so weeks after treatment finished....relied on PEG feeding.
August 2023 I started eating solid foods, minced beef and mash...small portions supplemented with Ensure 2cal....enjoyed Guinness alcohol free with meals...October/November 2023 I started on full meals....takes time for improvements to kick in
Peter
Hi and welcome.
If your partner is taking anything orally he is doing really well, magnificently so.
He can top his shakes up with any number of home made ones you can find on the internet.
Try mashed avocado with banana. You can blend in some paint butter too. Poached eggs slip down easily.
I couldn’t see the point of trying to eat while my mouth hurt so I didn’t try till it didn’t but we are all different.
Hi Peter, and thank you. I wish Ian had had a PEG but they said it was too late when I asked before treatment started. He was very slim to start with so the weight he's lost is all muscle and he's keen to get back to normal asap. And I'll remember the alcohol free Guinness!
Julie
Hi Dani
He's a fussy eater at the best of times, and although he can't taste anything he turns down anything he wouldn't normally eat anyway. But I'll trawl the internet and see what I can come up with.
Julie
He's a fussy eater at the best of times,
Men!!!!
He could make life so much easier for you both.
Im sure you’ll find something…. Maybe you could try liquidised soup
Hi it’s not too late for a n g tube to be fitted if contacts his cns. He really needs to up his calories i am 5 foot 9 stone and was told 2500 calories including 85 gram of protein plus 2/3 litres of water every day. Which I did for 15 month before I started to put weight on. I had my ng tube fitted middle of treatment it enabled my recovery to be uneventful. I had it out week 3 and to start with orally drink6 ensured a day which I topped up with poached eggs jelly tinned peaches then progressed to nursery type foods.
There a link below to a cook book with tips. Smoothies with peanut butter are high value and protein if he can’t get them to agree to a ng tube.
It’s a marathon not a sprint and well done to him for trying to eat
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I'm making a different soup most days and liquidising them. They've all been delicious, it's a shame he can't taste them!
. I wish Ian had had a PEG but they said it was too late when I asked before treatment started.
What Hazel says. Ask about an NG for a few weeks. That’s what I had
it's a shame he can't taste them!
Taste will return. It just takes months.
Hi Hazel
He flatly refuses to be tube fed as he thinks he will be eating normally in a couple of weeks. Stubborn or what! Thank you for all the links, I just hope I can find something that meets with his approval.
Julie
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