While waiting and waiting..

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Hi all,

I am nearly 69, waiting and waiting for diagnosis of what might be sinus cancer, I fear.. It started last November with persistent blockage on left side, at upper jaw level, and in Dec moved to swollen glands on left side and feeling as if cold was coming up. GP thought it was an infection, gave antibiotic which I took mid Jan, and two days later woke up with swollen face, whole left side. As it was Saturday, I called and went to A&E.. To cut a long story short, I only just had CT (pantonogram in Feb showed a shadow) and now I wait for my appointment mid May, with Oral & Maxil... surgeon. I feel awful! Today I browsed sinus cancer and, bingo, I have all, but none from descriptions mentions any general body feelings, so decided to ask you! How did your body feel before you were diagnosed..? Were you just your usual and your cancer was very much local or all was going worst..? Can you tell me, please?

Thank you!

Jg123 11 months ago

I felt absolutely fit as a fiddle when I was diagnosed. I bit my tongue and an ulcer appeared. But it wasn't an ulcer it was a small tumour. I bit it Jan two weeks later at dentist two weeks later at max fax all very fast. Biting my tongue saved my life the max fax told me. But besides that I was super fit . Oncologist said he thinks I was the earliest they have ever seen. Sending hugs xx

orrla 11 months ago in reply to Jg123

Oh, my.. Hugs from me too!

RadioactiveRaz 11 months ago

Hi i was / am fit I was/am a keen cyclist. Ihad. I issues at all I had cycled 1100 km in the weeks prior to my cancer diagnosis.inhad no issues with swallowmeatung or drinking Best advise keep off Dr Google yiu can self diagnose anythjng if yiu try please don’t The waiting’s hard but uts the inky way ti get a correct diagnosis.

Hazel x

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

Beesuit 11 months ago in reply to orrla

orrla said:
Oral&Maxilofacial don't know. No tumour. Sent me to ENT. Appointment mid-May.

After a whole year? What are they doing?

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

orrla 11 months ago in reply to Beesuit

Exactly!

All goes like that, other than with my chest tumour with which I opted for periodic monitoring because my spine falls and despite 13 scans in total no treatment yet...

I am nearly 70 now. I think they do not bother.

I am exhausted!

It's just left side of my face, head really. Goes from above eye down by nostril to jaw and neck. Eye blurs. Swells above lip, feels like dropping, num-bish, pain to ear and behind, sometimes sharp. Burns. There are days eye and nose drips non stop, next day fine. Just left side.

CT = no tumour. Looked with that torch on his head. Said there is nothing.

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