Hello all. I have recently been diagnosed with head and neck cancer stage 2. It started back of tongue then hooked onto my lymph glands on the right side of neck. I am due for radiotherapy on the 13th of April. Have not got a clue who to call or speak to if I need help as im sure spread to further down my tongue ??? Thank you for letting me join .
Hi and welcome. You’ll have been given the number/ email of your CNS ( clinical nurse specialist)
Try not to worry about the cancer spreading further between planning g scan and the start of treatment. The radiotherapy prescription will make allowances for that and the irradiated field always has a margin round the tumour.
I had to wait six weeks between planning scan and the start of treatment and seven years later I am alive and well.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
PS
When you start treatment your radiographers are you first port of call and your conduit to the rest of your team. You will be seeing them every day so tell them how you feel and what you need. You’re likely to have a weekly meeting with speech and language/ dieticians and probably either your consultant oncologist or their registrar half way through. That should just about cover all bases.
Have you had a feeding tube fitted or nasogastric feeding discussed?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
