Hi. So I’ve been lurking around this page for a couple of days now and have found hope in many of your posts. I thought it was time I said hello and gave a little of my story as I guess I’m going to be relying on you all a lot more. (Hope that’s ok).
Like many on here I noticed a lump on my neck but unlike most I ignored it for many months (I had my reasons). When I did see a G.P. (Jan 24) It all moved forward quickly.
Biopsy on neck (Jan 24) found it to be cancer and many scans followed to find primary site. The primary was never found on scans so TORS surgery last month where they ‘suspected’ it was.
Pathology results confirmed it was in my right tonsil and I was offered to either be part of the Pathos Trial or purely chemoradiotherapy. I didn’t feel remotely intelligent enough to make this decision (jeez I can hardly spell my own name of late). Anyhoo this week I have agreed on the Pathos Trial. I will have surgery again next week TORS and neck dissection. My thinking is that as we know it is remaining in the tonsil area and sneaked over to some lymph nodes the more that can be ‘cut away’ possibly less treatment at the other end?? Although I’m aware I will need radiotherapy at the very least.
I kinda know what to expect from TORS now but looking for experiences of neck dissection and how to care for scar and radiotherapy and all that goes with it?
Sorry for the long post and all the questions .
