New to the group and ready to help

Hi Micky, a warm welcome from me - a fellow survivor. 

Hi Micky, I’m Debbie, carer of my husband who underwent treatment starting Dec 19th. Welcome …. It’s lovely to have people join the group to support others. Like yourself I didn’t join until mid way through my husbands recovery.  Wish I’d joined earlier, I think the support would have been invaluable.

Click on my profile and you’ll see our journey. It’s a good idea to fill it in, saves you repeating yourself over and over.

Take care and keep fighting the fight xx

Hi Micky. Welcome to the community. It’s good to see you here joining all of us here giving advice and offering a shoulder to lean on. I’m Dani,  over six years clear and now discharged from routine review. I’ve been here since treatment started and leaned on a few folk here. 
How are you coping with your side effects. You haven’t found your new normal yet. We get improvements for years, especially the first two. 

Hi Dani and thanks for responding.

I had a really tough 6-8 weeks immediately following the RT and Chemo, which came as a real shock as I felt really good during treatment! Thank goodness for the PEG which I had to use extensively while not being able to eat orally.

A few months later (now) I feel much better and wanted to share with others that it does get better.

New normal for me currently is basically down to reduced saliva, which means I need to drink while eating drier foods.

But thank you for pointing out that even that will change, hopefully for the better, in coming months.

Thanks for the welcome Peter.

Hoping to share my experience with others currently needing advice and support.

It can and usually does gat better.

Hi Debbie,

Your husbands timeline is close to my own. I hope he's recovering well too. I had throat and tonsil surgery in Nov 24 and my Chemo and RT started late Dec and ended 31st Jan.

Took until May for me to feel back to some kind of normal, but now here to share, support and maybe advise others just starting out on a real journey of highs and lows, where you have to take each and every high as a win.

MickyC1cb486 said:

New normal for me currently is basically down to reduced saliva, which means I need to drink while eating drier foods.

That does get better. Have you explored acupuncture? that has helped me and a few others

Hiya Micky, yes it’s been a real rollercoaster… not sure we’ve got off of it yet but generally things are looking up.

My husband only had chemo and RT his cancer was too far gone to try and remove anything so they blasted him with as much as they could. Results have been amazing, we weren’t expecting to get the all clear but we did. He still has radiation sores in his mouth and he says his tongue doesn’t feel right (which worries him and then by default me) but I’m sure this is just taking time to heal. 
 
Dani, any advice on timescales for radiation sores, tongue strangeness etc I can share with him ? 

Anyway, welcome to the community,  you’ve found a great bunch of people who support each other as much as they can. 

Hugs from west wales xx

Hi Micky welcome from me. This is a great forum, for wherever you are on this journey. It's just coming up to 8 years ago since I started my treatment. Like everyone else on here I'm happy to help where I can with any questions people have, or just listen to those who have a rant, to get things off their chest.

Ray

Hi welcome from me I’m Hazel 7 years post chemo radiotherapy HPV toms8l cancer with 7 lymph nodes  no surgery

alsways need more people to help,others 

Hazel x