Hi all,
I'm a HPV neck and throat cancer patient that has recently had the good news that I am now in remission following a real journey of ups and downs over the last 9 months. And for some reason, during my treatment and recovery period, I never thought to seek the help and support of a forum like this, but in retrospect I really wish I had, as it can be a lonely and scary time.
So with that said, I have joined to offer support and personal advice to those newly diagnosed that would like advice on what to expect and how to deal with all the ups and downs along the way.
My experience would cover, neck surgery for removal of lymph nodes, throat surgery for removal of tonsils, oral surgery for removal of wisdom teeth. PEG tube fitted (a must have in my opinion) followed by 6 weeks of Chemo and RT.
I started treatment in Nov 24, and was back part time working by Apr 25 and am currently feling very well with a few managable side effects mainly to do with eating and swallowing, but as iI say, managable and what I consider my new normal.
So I am looking to support, help and advise fellow diagnosed, so you may see me popping up on various threads.
MickyC
Hi Micky. Welcome to the community. It’s good to see you here joining all of us here giving advice and offering a shoulder to lean on. I’m Dani, over six years clear and now discharged from routine review. I’ve been here since treatment started and leaned on a few folk here.
How are you coping with your side effects. You haven’t found your new normal yet. We get improvements for years, especially the first two.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
