Tongue cancer

Most, if not all,  on here have been through the same or similar, ask anything, 24/7 , always someone around to chat with.

Thanks. The not knowing the full extent of the staging and treatment is hard to deal with. The thought of radiotherapy is horrendous as read so many horror stories about it. 

NickyJJ4978db said:

The thought of radiotherapy is horrendous as read so many horror stories about it. 

Hi Nicky. RT is difficult but it’s not a horror story. You won’t read many here. Keep away from Face B groups and Google where you WILL read horror stories. Nobody gets all the side effects and the ones we do get can be mitigated. Nothing happens all at once. It creeps up on you so don’t despair, it’s doable. I was 68 when I finished 6 weeks treatment and I’m now over six years clear. 
Stay with us. Listen to us and your team. We will get you through. 

Thanks for the advice. Yes shouldn’t be reading  about something I might not even need yet 

Hi Nicky

I'm 70 ish, diagnosed with tonsil and neck cancer over 2 years ago, 30 radiotherapy sessions and 6 chemotherapy, treatment is not easy, anything associated with cancer never is , some do miss the nastiest of the side effects.

HPV 16+ cancer is curable, 90% success rate, recovery from the treatment can be slow but eventually life returns to something like normal.

Keep the forum updated with your progress, the support on this forum is second to none.

Thanks Micky. I will keep you updated on results on Monday. You have been through a lot. Thanks for your supportive comments  

Hi so the good news is my mri and ct were both clear of any spread. So I’m looking at an operation in the next month to remove around 4 cms of my tongue plus lymph node dissection. Expected to be a very long operation as in all day with a possible 2 week stay! He wasn’t sure whether I’d need any radiotherapy yet. It’s at stage T2. 

Great Nicky.

Good luck with the op, hopefully  you wont need the radiotherapy.

T2 is as good as you could expect.

Keep posting with updates.

Thanks

Hi Nicky, whatever treatment you have, you should be able to glean some helpful info from here..

community.macmillan.org.uk/.../helpful-tips-for-those-about-to-start-treatment