A new life

Hu Drine. Welcome from me to our small but friendly group. My cancer was tonsil but there’s  a few nose cancers on here as well. If when you’re ready pop a bit more info on either in your biography or on the post will help the right people to pop on. Pleased you’ve told family it’s always hard telling loved ones but you’ll feel better now they know.Has radiotherapy been mentioned ?

I too hadn’t had a Ct scan pet scan or mri but within a week I had had all 3 and a mask made for treatment shortly afterwards. We adapt and get in with  it it’s surprising where we get our strength from but we do.

Hazel 

Hello Drine 

A warm welcome from me 

I’m sure you must feel quite numb at the moment but when realisation kicks in there are lots of people here to help you. 
There is a really useful thread here https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/updates/224443/update---cancer-of-the-nose-and-upper-lip#pifragment-13906=1

If you tack yourself into there somebody is bound to reply to you. 
Stay with us and let us help when you know what’s happening 

best wishes 

Hi Drine

Sorry to hear about your recent diagnosis I had stage 2 (non sun related) BCC  and after a biopsy had to have MOHS surgery and skin graft all healed brilliantly nose is wider and bigger now but its a distant memory as im now about to embark on my 4th week of Radiotherapy and Chemo for tonsil caner( base of tongue and 3 lymph nodes..

Glad you told your family ( I found that very difficult but also a relief) and hope you have sone support around you . 

Some people like to know whats procedures/ scans  look like others dont I watched only the video links sent to me by Hazel and Dani from this site which I found helpful … Im clustraphobis struggled with first MRI but asked ENT specialist for some diazapn ( sedative). Thought I would need it for mask fitting and daily  radiotherapy but managing with listening to my own playlist and taking my bain to my last holiday️.

Whatever the plan/ journey is You Have Got this ! You can di it !for me this was the worst time waiting … feeling anxious …. not knowing .Keep your brain busy doing things you enjoy, eat some of your favourite meals ..whatever you enjoy do it !

Debbie

Thank you so much for your message Debbie. It's good to communicate with someone who's there and understand.

Thank you also for the advice (the one about eating is the best!) and I wish you all the best for your treatment.

Drine

Thank you Hazel!

Yes, radiotherapy has been mentioned. The consultant told me last week that it would be intensive chemo, then removal and radiotherapy next. However, I had a big chunk of the tumour taken out on Wednesday (I thought I was only going for another biopsy!) and assume chemo will follow. Waiting for the next MDT on Friday as its when they will finalise the treatment plan.

You are so right about adapting - I can't believe how much has happened already within a month!

Sandrine

Drine said:

Yes, radiotherapy has been mentioned. The consultant told me last week that it would be intensive chemo, then removal and radiotherapy next. However, I had a big chunk of the tumour taken out on Wednesday

Hi Sandrine. Is it nasopharyngeal cancer you have? If it is that thread I linked for you won’t be much help. NPC is its own entity. Nevertheless Radiotherapy is a real challenge and it really would be better if you had some help at home. 
Is that possible at all? 

Hi Dani,

It is called carcinoma of nasal cavity from my last diagnosis. Thanks for the heads up about radiotherapy.

Sandrine

Stay with us. We can all give you suggestions to make this easier.