Hi all. I've received confirmation that I have HPV + base of tongue/tonsil cancer.
I'd already done the homework so wasn't surprised by anything new. I did also have a tentative look at the posts here, which are very informative & supportive.
The oncology side of the treatment will be in Oxford, 1+ hours away (which will be interesting for a block of 6 weeks). Hopefully I'll get an invite to go for initial meet within the next 2 weeks.
I have a couple of questions at this stage.
1) What's the likelihood of a neck dissection? It's in my Lymph nodes too. How long does it take to recover from this before radiotherapy?
2) TEETH. I'm very dental phobic and any treatment needs to be done under sedation. I have lots of metal fillings in my molars from 25-30 years ago. Is it easier just to say goodbye to them? how long from extraction can radiotherapy start.
Thanks in advance.
Becky
Hi sorry to hear about your diagnosis. Re neck dissection I would think this is likely . My mri of my neck Was clear but I still need dissection when I go in for my op (tongue cancer). About teeth I have no idea sorry. How are you coping with all This? When did you find out?
Official diagnosis was yesterday but 2 weeks before I knew it was a likely possibility.
When is your op?
In next few weeks . It’s going to take all day!!
Hi Becky. I also had teeth with amalgam fillings Leeds dental hospital did a thorough check and they were all,ok and I needed no extractions. I have always gone to dentist regularly so maybe that helped. I didn’t have a neck dissection Leeds cancer centre don’t do them routinely I had 35 radiotherapy and 2 of a planned 3 chemo again my trust does chemo every 3 weeks longer infusions. Stick with us we’re a friendly bunch always happy to help.
Hugs Hazel 7 years post treatment
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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