I came across this group as I was googling what I could do with countless bottles of Fortisip having had my PEG removed this afternoon. Although treated for stage 1 tongue cancer in 2006,17 &18 it's seemed just about bearable but in January last year I found a dreaded lump in my neck despite having quarterly check ups, and after tests an inch long tumour was also found on my tongue. I've since endured radical surgery including a radial flap, 33 fractions of radiotherapy and two cycles of Cisplatin. Unfortunately, l have a mild autoimmune condition which exacerbated the side effects and I can truly say that I didn't think it was possible for a human body or mind to endure the day to day brutality of the effects which went on for months. But here I am, upright, walking, talking and just about holding it together emotionally. Everyone tells me how well I'm doing, friends, family and the medics but I can't lose the constant anxiety that it's all going to come back for a fifth time. How do other members cope with the unknown and start enjoying life again? It's such a relief to find a group like this, head and neck cancer is a rotten thing but gets no publicity or ribbon wearing and it's very hard for others to truly understand how it feels.
