Hi everyone In December, 2024 I Waa diagnosed with Alfactory neuroblastoma at the age of 39. 2 years before diagnosis I was suffering from this regular nose bleeds that GP was thinking that is nothing serious and is probably some blood vessels that...
Does anybody know if it’s really common that after your three month follow up for a scan that you will need another scan due to inflammation. Or is the initial three month scan usually effective where they don’t have to do a repeat because I keep thinking...
Morning all I’ve had the mri yesterday which was a two week painful anxiety filled wait, just the next stage of waiting… what I don’t understand is why do they not take a biopsy straight away? There’s an obvious thing there looks like a large jelly...
Evening all, ive and MRI with IV this Friday & im so stressed as expected, anxiety is awful, been waking up in the night with full on panic attacks not had those for many years…Anyway I’m wondering is it worth just booking a load of tests privately...
Hi Everyone Just thought I'd do a quick update. neck has healed really well from dissection. Had my Tors robotic surgery yesterday. Was first on the list which was really good for my anxiety. Few issues getting cannula in again but everyone lovely...
Can anyone help me? A close member of the family has been diagnosed with Olfactory Neuroblastoma, which I believe is a very rare form of cancer and therefore I cannot find out much about it on the internet. Does anyone have any first hand experience...
My husband is finished with chemo and radiation for over a year, he’s having immounotherapy every 3 weeks, it’s keytruda. Now he has a couple bad bottom teeth and needs a full lower partial denture. So a couple has to be pulled. Anyone else have dental...
Good afternoon, I am new here, my name is Kellie and I'm 37 and have been diagnosed with SCC right lateral tongue (I've added a short story to my page) I've been very nervous to post as it seems much more real now. My team have told me that the...
Hi there! I will finally see an otolaryngologist (+endoscopy) tomorrow. May be this visit will clarify if I have something suspicious. My symptoms isn't worsened much, I still sleep very well, now any pain isn't depending from chewing or hot/spicy/cold...
Hi everybody, I pray for all to be well. i recently been diagnosed with Nasopharyngeal Cancer. I have chronic migraines, ear ache and lost of hearing, jaw numbness with tingling. This week I have had scans done and am waiting for the dates of when to...
