Does anybody know if it’s really common that after your three month follow up for a scan that you will need another scan due to inflammation. Or is the initial three month scan usually effective where they don’t have to do a repeat because I keep thinking that after all this waiting that something will interfere with the results and it’ll just be more waiting and more stress
Is this Mark or Mrs Mark?
Not common.
See here
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi there, it happened to me. First after three months, second after six months. The second was required due to inflammation making the first scan difficult to interpret. I assume this is because the cancer cells and inflammation show up similarly on the scan. I was told that the first scan looked good (clear) but they couldn't be certain because of the inflammation so scheduled a second one. I was also told that this happens fairly often. All the waiting throughout my experience so far has been stressful, I think it is a natural human response given the circumstances.
was also told that this happens fairly often
Yes I think they tell you that to reassure you. I think it’s around 10%. The truth that the explanation you give is spot on. My oncologist told me that he would prefer to PET at six months to avoid it but that’s bad for patients psychologically
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Rose. Nice to put a name to your ousts
try not to worry please
you can’t plan for every eventuality. Remember there’s a life to live
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Rose. Nice to put a name to a user
These things happen occasionally. In most cases I have delayed a PET scan to enable healing, but on one I had a hot spot in my jaw. It was a deep seated infection under a tooth and the radiologist correctly dismissed it giving me a clear scan. I later went on to have the tooth removed so as not to confuse any further scans even though it was no longer troubling me.
Our minds can run riot during these times. We can get so concerned that we lose sight of the important things in life and worry so much that it takes over our lives. At that juncture we do not get on and enjoy the new opportunities the treatment has offered us.
Ask the questions that you wish of us and the clinical team. You will get honest answers - not always what you want to hear, but based on lived experience. Hold onto the fact that the chances are massively in your favour that the treatment has been totally effective and you have a long life ahead with your husband, family and friends.
Whatever cancer throws your way, we’re right there with you.
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