Worried

  • 4 replies
  • 85 subscribers
  • 208 views

Hi all, just over a year ago I noticed the side of my tongue at the back was sore. Because I have a history of HPV I was quick to get it checked. My dentist filed a tooth and I got my GP to me to an oral surgeon. The GP said the folaite papillae were inflamed. Oral surgeon hardly said a word and just said he didn’t think it was cancer and to get a night guard (even though I don’t believe my teeth were causing the problem). I then kind of forgot about the problem due to having an extremely stressful and traumatic year, however now a year later one of the papillae is extremely Inflammed again, it has been bleeding on contact and I have also been suffering ear, head, jaw and neck pain. I saw an ENT as I’ve also had difficulties swallowing over the last 6 months. When he examined my tongue he said he wasn’t too concerned as the area felt soft and went flat when he pushed it down which it wouldn’t if it was something sinister. Yet again he just said it’s probably teeth rubbing and the pain is just referred pain. He said he would send me for a MRI scan rather than biopsy at this stage. On the referral form he just wrote ‘ulcer?? ’ I’m extremely worried as all my symptoms seem a bit extreme just to be from a tooth rubbing.

Can anyone offer an advice? Can the folaite papillae turn cancerous? Many thanks 

  • Hi  

    I had an MRI before a biopsy so I would just push for that and get it done soonest. 

    You’re seeing an ENT already so that should speed things up. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks Beesuit, I’ve had the MRI and have my follow up on Tuesday. What do you think of the comments about it being soft, Is this is positive sign despite my symptoms? 

  • . What do you think of the comments about it being soft, Is this is positive sign despite my symptoms? 

    I can say my tongue cancer was described as indurated which to all intents and purposes means hard. It’s a characteristic of cancer 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi there.  A couple of my experiences on my cancer journey - both of which turned out to be nothing. Firstly I developed an "ulcer" on the tip of my tongue that would not heal, this turned out to be a bit of rough tooth causing the abrasion on my tongue.  Secondly I had a suspected cancer found in my tongue by an ENT consultant who did not know my history, but was showing caution.  I had the panendoscopy (a GA process to see down your throat whilst asleep) and my normal ENT consultant said as soon as he touched the "lump" it was soft and he knew it was not a tumor.  What it was we never found out as it went away.

    Oral and ENT are really good at identifying issues, but always require scans and maybe a biopsy to confirm their thoughts.

    Undoubtably this is a worrying time for you and hopefully the MRI will come through soon and you will know one way or the other.  Most referrals turn out to be something other than cancer.

    Peter
    See my profile for more details of my convoluted journey