Hi
I have already been on this although not great on these forums etc lol it was suggested somewhere i post my own blog ? 
i hope that's what this is 
im not far along this journey yet,i have had the biopsy which i found not very pleasant ,i have been diagnosed as having base of tongue cancer which i though was the viral one HPV because i dont smoke or drink the dr said it is most likely was that but i had not had the biopsy done at that point so i suppose i only held on to some words and missed others.I have had a pet scan done recently so if its gone into nodes or anywhere else that will show it up but its the waiting and waiting for everything i sometimes let my imagination run away with me when i have a time when im not occupied with doing other things.. I am staying positive ,they will be making a mask for the radiotherapy and im also getting combined radiotherapy/chemo for half a day once a week.I am getting a tube /peg put in my tummy,wonder if i can still have coffee ? Any tips would be great
: having an operation but will be getting 30 sessions 5 of which are chemo + radiotherapy ive had the mask made and from Monday 5th it begins,ps getting the feeding tube fitted on the 8th Aug
UPDATE
I've not been on here for a little while the constant day in day out half a day at a time travelling and being in hospital is tiring ..I am sticking it out as i am determined to live..I am hoping for a couple of tips ..I had to go back in to hospital and given a litre of saline and Magnesium,,I have been drinking as much as i can but been told now i need to drink a min 2 litres fluids a day.I thought i was drinking lots.my mouth right now has 3 ulcers and dried like an Arabs sandal..I am hoping for some tips :) i can barely move my mouth in the morning as its so dried up ,im trying to find something i can drink thats pleasant but also calming on my mouth..I have been using the syringe to put more fluid into me through the rig ( peg) On a high yippeee i have did 10 sessions,20 to go..O h and even the taste of ice cream is not great to me boo hoo
Ah, I wondered. Sorry...I was probably being too nosey. We aren't routinely scanned after our initial PET at 12 weeks plus so I thought perhaps you might be in the USA where they scan more frequently.
I too had base of tongue cancer but treated with RT alone. The Pathos trial was recruiting at the time I was diagnosed which would have given me a chance of surgery alone but sadly my cancer was inoperable.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
hi thankyou for that,if i still feel the mask is too tight i will ask them to loosen it slightly lol my nose was pushed in lol i remember thinking i will have a mask shape with a boxers nose i get the mask check done on Monday then go for chemo then back to radiotherapy lol i need to take a map..I am going to Queens at Castlehill Hull,although with my Scottish accent i might pretend ive travelled all that way lol I love ice lollies and ice cream yum yum I have made a mistake re the p16 its not plus its negative 
Thankyou Mark 
sorry Mark i am p16 negative not positive..
It still responds well to treatment. later recurrence is just more likely.
You can be P16 negative and still be HPV positive The P16 stain is a surrogate but not infallible. Ask if they have done HPV DNA.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thankyou Danni and Mark..I know when I asked about the pictures number ( not really knowing what it was ) it was my daughter asked me..I was told it is sometimes a good thing to concentrate on getti
well and not getting overwhelmed.with numbers.. There's a part of me wishing I had done that lol
