Hi
I have already been on this although not great on these forums etc lol it was suggested somewhere i post my own blog ? 
i hope that's what this is 
im not far along this journey yet,i have had the biopsy which i found not very pleasant ,i have been diagnosed as having base of tongue cancer which i though was the viral one HPV because i dont smoke or drink the dr said it is most likely was that but i had not had the biopsy done at that point so i suppose i only held on to some words and missed others.I have had a pet scan done recently so if its gone into nodes or anywhere else that will show it up but its the waiting and waiting for everything i sometimes let my imagination run away with me when i have a time when im not occupied with doing other things.. I am staying positive ,they will be making a mask for the radiotherapy and im also getting combined radiotherapy/chemo for half a day once a week.I am getting a tube /peg put in my tummy,wonder if i can still have coffee ? Any tips would be great
: having an operation but will be getting 30 sessions 5 of which are chemo + radiotherapy ive had the mask made and from Monday 5th it begins,ps getting the feeding tube fitted on the 8th Aug
UPDATE
I've not been on here for a little while the constant day in day out half a day at a time travelling and being in hospital is tiring ..I am sticking it out as i am determined to live..I am hoping for a couple of tips ..I had to go back in to hospital and given a litre of saline and Magnesium,,I have been drinking as much as i can but been told now i need to drink a min 2 litres fluids a day.I thought i was drinking lots.my mouth right now has 3 ulcers and dried like an Arabs sandal..I am hoping for some tips :) i can barely move my mouth in the morning as its so dried up ,im trying to find something i can drink thats pleasant but also calming on my mouth..I have been using the syringe to put more fluid into me through the rig ( peg) On a high yippeee i have did 10 sessions,20 to go..O h and even the taste of ice cream is not great to me boo hoo
Hi Susie...Yes that mask it alarmingly big. I suppose it has to be as it holds your shoulders down. Do you have eyeholes in it? That helps a lot. I had mine cut but many have them preformed. Chemo days are long but RT only should be pretty quick. My treatment room didn't have doors, just a couple of right angle turns and my husband sat just outside. Sometimes there might be a wait in the waiting room for both of us and on a couple of occasions there was a breakdown but treatment sessions were never more than 15 minutes, often shorter
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good morning Dani this is a preformed mask no eye holes or anything ..I have never felt claustrophobic but i did with it on..I thought it would just be like a little face mask lol 
boy o boy was I wrong..
Ask them to cut eyeholes in it, that’s what I did. It makes a lot if difference being able to look around. I was fascinated but if you find the machine alarming as it goes round you just close your eyes.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I haven't had the machine yet :) ive looked on the website at it..I will be like you fascinated as I am with the ct scanner..Although not so keen on the mri..But thankyou yes im going to ask them if they can put eye holes on it 
they are doing a mask fitted on the day I start my first chemo and radiotherapy I will ask them then :) xx
Are you having an mri with the mask on?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I have had that already when they fitted the mask 
Well done. I never did but the thought of lying there for 40 minutes with that mask on ? Well done.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thankyou 
Hi Liz oh yum yum 
lol did you need one of those masks ? I think my longest time there will be the chemo and radiotherapy day...ive said to my other half to just go to work as he will just be sitting around for half a day but I think as it will be my first day he really wants to be there for support..
We live in Patrington so its a fair jaunt going forwards and back every day but its really only a small part out of my life or should I say our lives as kev.is struggling too as my support..xx
