My husband has his last post treatment appt in 4/11. He had a good report and dr wants to see him back for follow up on July. His bloodwork from April showed he’s still anemic and thyroid was off some but dr said all this is normal following treatment, which ended jan10th.
today he came home from work not feeling well. Told me I was worrying for nothing. Symptoms Are nausea, fatigue. He didn’t eat much today because of nausea. He said it doesn’t feel like he’s getting flu. Just feels different. Just tummy ache/ nausea
should I call his hematologist or wait it out to see how he feels in a day or two Everytime he gets I’ll I worry and as most of you know, i am overboard with this nonsense
He's less than three months out of treatment and he's back at work?
Radiation fatigue persists for months so could just be that.
I'd have his thyroid checked again My oncologist told me that hypothyroidism caused by RT does not get better
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hello
This must be a worrying time. Worse for the supporters than probably for those of us going through it. I can’t comment on the medical necessity, although thyroid and anaemia can cause fatigue….but if it were me I’d be giving the professionals a call…for my own peace of mind if nothing else.
Is he overdoing things? If I understand it correctly he finished treatment around Christmas? He’s only 4 months down the road. Don’t think I would have been able to go back to work at that point….but we’re all different and im probably just a wimp!
best wishes
Liz
Hi Dani, I have to agree,it's too early to go back to work, not sure what his treatment plan was, but my husband is now 4mths ish post treatment and not quiet ready for full time return to work, he does find that some of the late side effects seem to keep in,which is rather depressing,as one moment he's having a good period of feeling better,just to have a setback. So I think her husband should take it easy for a little longer. But we'll done for have come this far. Hugs, Mel xx
Yes he’s back at work and the dr did mention to him about rechecking thyroid with his next bloodwork in July. I was wondering if he should be getting it checked sooner.
what happens with the thyroid as far as how he’s feeling? It won’t improve? Just concerned w him feeling nauseous. He has felt this way off and on over the years and the next day he’s fine. Not sure what this means.
Once the thyroid is damaged by RT it doesn’t recover. 50% of patients get hypothyroidism sooner or later. It can even be a late effect years down the line. That’s why I get mine checked every year, even if it’s normal a downward trend can be obvious. We end up taking thyroxine.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Interesting. I recall your having suggested Dani in another thread that an annual thyroid test post treatment was a good idea…so I asked at my surgery. They refused point blank and said they wouldn’t do it unless instructed by the hospital. I asked the hospital but they said they wouldn’t request it until there were symptoms of hypothyroidism. Probably not the worst example of inconsistency across Trusts, but indicative of the trend.
Liz
Hi he’s back at work quite early. My radiation fatigue kicked in around 3 months after treatment finished you can’t fight radiation fatigue you have to listen to your body. I became the queen of the power no sometimes several times a day. I likened it to like hitting the wall when doing a marathon you can’t do anything but rest. It doesn’t last forever. But ignoring it means longer to fully recover.
As for thyroid like Dani says if it’s battered by radiation treatment it doesn’t improve. I’ve a friend who has been on thyroxine from around 4 months post treatment. Once on it’s for life.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
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