After treatment is done

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When you finished your treatment of chemo/ radiation for your hpv pos head and neck- when you did your follow up scan , were you all clear of your cancer or not?  The closer I get to my pet scan the more worried I get. TYIA. 

  • FormerMember
    FormerMember

    Finished in June 2023....PET/CT scan in September....all clear....stressful wait...no point in worrying just adds to the stress.

    Peter

  • 6 weeks of RT for stage 2 base of tongue cancer. 
    I had an MRI at 12 weeks which showed complete resolution of cancer. Thus was followed by a PET/CT at 16 weeks. This showed an avid spot where the original cancer was. Biopsy 6 weeks later showed NED. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • What is Ned?  And what did they do about the avid spot?

  • No Evidence of Disease

    The avid spot was biopsied and the pathologist found no cancer. It must have just been inflammation. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi markmac I finished my treatment 10th November 2017, I had a MIR scan mid-February 2018, the consultant rang me to say the treatment had been successful, 2 or 3 weeks later.

    Ray

  • Hi treatment finished 31 August 208 pet ct scan 4 January results =14 January  2019. I flew to Spain in between for 3 weeks then flew again 18 January .I was Ned  no evidence of disease and then had follow ups for next 5 years. 

    Try not to stress,you can’t influence the results yiuve dine the hard work as we say trust your team. 

    Hazel,x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I had my PET scan 4 months after my treatment ended and got the all clear. It was such a relief. The closer I came to the scan,  the  more I fretted. 

  • Thank you everyone the waiting is the worst. I just pray it’s fine for good. 

  • Treatment ended 21st June and had my CT scan 12 weeks later. Unfortunately it showed "something" in my chest so had to keep the tube in (which by this point was redundant) until I had a PET scan. Few weeks wait for that, but it confirmed no cancer, and the activity in my chest was related to the radiation.

    Last week I had results of another CT as had been briefly spitting up blood again in the morning, but all was clear with that. The stress leading up to the scan and results is horrible, but if you can find ways to manage it, it will really help.

    Paul McKenna was very much my friend, and I really recommend downloading his "Control Stress" hypnotic trance.