Hi all,
This may be a really stupid question but...
Will I know when the appointment is my treatment planning appointment? And will I be allowed to take someone with me to it?
Had a biopsy two weeks ago, I was being discussed at the MDT meeting today and I've just got a text and email with an apointment on Monday but no other details. I have left a voicemail but the dept are really not great at getting back to me.
Hope this makes sense.
Cheers.
John
Interesting reading....mac11652-head-and-neck-20220725.pdf
Research shows that risk factors have changed
80% of oropharyngeal cancer is caused by HPV virus
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Booklets are probably outdated when they are published... Still have some helpful sections
Indeed and I didn’t intend to dismiss it at all but I stand by the correction.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
The meet the consultant for consent forms also includes a long list of scary side effects. Also the meeting told me I was having bilateral RT on both lymph nodes (just in case). This then meant I needed a feeding tube to my stomach through my abdomen. All quite over whelming although I had felt prepared. I had my sis with me and needed a break at one point.
I am sure you will. If you feel anxious I think talking here or to your team might be helpful.
My GP and Specialist nurse both reminded me I should talk to them about my worries too, even if they can't give information/updates.
I know how you feel, the wait is long and you are not sure what the waiting will lead to.
Hopefully it will be better news than you expected.
*****
Non-HPV tongue cancer T1N0M0
3 surgeries on tongue+neck dissection.
Diagnosed Nov 2024.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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