HPV right tonsil cancer diagnosis

Hi Paul will do it as Dani says one day at a time one foot in front of the other 

Be prepared as treatment progressed he may well get a bit temperamental. I wasn’t always nice to John  in fact not proud to say it I was awful some times. But like Dani’s husband he’s a stoic Yorkshire lad and just got on with it. 
if he’s tired let him nap no point fighting against the tiredness. 
Hazel c

Good evening LadyAH, please try not to worry about the side effects too much as we all react differently, i did not suffer that badly, the things i suffered from were tiredness, and soreness where the radiotherapy is targeted plus eating can be an issue hence the feeding tube along with dryness of the mouth. I found that after 3 months things were starting to settle down a bit and 6 months was the turning point but to be honest i would say that after a year your husband will be in a better place. Your husband must listen to his body rest as much as possible and take any meds that will help him recover especially if it becomes painful. Dont use Google to look for answers or diagnoses as it can be so misleading and cause more worry, i think a lot of the stress at the moment is because everything is moving quickly now with all the appointments etc. I have always been a person who takes each day as it comes as it will all come together, a bit like a jigsaw even with the money side of it as he should be entitled to some benefit also if he is working his firm might help him as much as possible, i know mine did. Try not to let this cause too much stress for you as his team will look after him and make sure he gets the best treatment with as few side effects as possible aiming for a complete cure which with head and neck cancer is very doable as many of us can vouch for. Wishing you and your husband all the best, together you can do it. Take care.

                                                                                       Chris x

Hello

So many useful replies here, & would only add as follows. I had the same as your husband ( tonsillar cancer HPV +T3 N0M0 ) in 2023. Complete response last December. Somebody on here ( apologies if l get this wrong - Dani or Hazel) put together a list of things they used in recovery/ during treatment. I read it just before my treatment & either asked for some of the items at my hospital, or bought them ( non prescription items) via Amazon. This was amazingly helpful! Still using the Zylymelts ( for dry mouth )… which are not available on prescription. I am sure whoever it was will refer you to the list! The treatment period passes quickly … This site is fantastically helpful! X

Woodey said:

Dani or Hazel) put together a list of things they used in recovery/ during treatment.

Not sure it’s me but I made one here 

https://todaymycoffeetasteslikechristmasincostarica.com/2019/10/27/drugs/

Thanks Dani, I'll keep this for Paul to be able to have a look at - I've been making a little list of things I've read on some of the blogs so that Paul has something to refer to should he have any of those symptoms xx 

We now have his radiotherapy mask and CT scan appointment for 7th November and he starts treatment on Monday 25th November apparently.

His MacMillan Cancer Support Worker has been amazing already - he mentioned that his throat pain is getting really painful at the moment and she's made him an appointment with ENT tomorrow for them to reevaluate his throat and hopedully prescribe some pain relief to help as he's not sleeping well and needs to function to stay at work as long as possible before treatment starts bless him 

Let’s hope he gets his pain under control and you should both feel better now the treatment date is in sight. Some modern masks are open faced but if his isn’t ask for eyeholes to be cut. It makes all the difference if you can see out.