Hi all,
New to all this - just wanted to reach out at the moment. My darling husband (we have been married for 4 months) has just been diagnosed with HPV cancer of his right tonsil with a couple of lymph nodes affected which we found out five weeks ago.
We had his first oncology appt on Monday just gone and since then he's had a dental assessment and we have a gastric tube/peg feed assessment next Friday and a wellness appt with the team next week - so much coming all at once. Still waiting on hearing about his radiotherapy mask as he's going to be having six weeks of radio/chemo.
The first oncology appt was harder than we imagined it would be with all the facts about what he can expect to happen and how the radiotherapy is going to make him feel was really hard especially as we also got told that it could knock him sideways for six months etc.
Still trying to figure out how we are going to manage financially whilst he's off work and how I'm going to work around his appointments and wanting to be with him etc as we do everything together including work together. He's not only my husband but my best friend.
The stress of things is starting to manifest now and I know this is going to get worse for not only my husband but also myself. He's in a lot of pain with his throat already so we are worried sick about when the treatment starts.
The first oncology appt was harder than we imagined it would be with all the facts about what he can expect to happen and how the radiotherapy is going to make him feel was really hard especially as we also got told that it could knock him sideways for six months etc.
Hi and welcome.
Nobody gets all the side effects. They have to list them on your consent form
I had six weeks of RT at 68 years old and I can say that I was over the worst at 12 but not happy with the way I was till 6 months. My oncologist was upfront with me. He said the treatment would be tough. The cancer would take a year out of my life and he would cure me. It was, it did and he did.
Having said that it’s doable. Do stay with us. There are lots of us here to help. Somebody is always not far from here.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Im trying to gather as much information as I can re things to help my husband when taste/soreness hits etc so we can jump on those issues straight away but realise that there is a lot out there!
Hi again.
Be prepared and this is a good place to get advice but don’t try to get every situation under your belt at once.
This is an evolving story.
My advice would be to not be brave and take pain meds when needed. Take analgesia by the clock to keep in front if the pain. Tell the radiographers every day how he feels. They are his conduit to the rest of his team.
it’s good he has a feeding tube planned. It will take the heat off struggling to keep weight up
Do get decent analgesia for his pain at the moment but once RT starts it will actually help the pain for the first two weeks as the cancer shrinks. After that I’m afraid the radiation takes hold.
He will get there and it’s really good you are there for him. It’s more important than you know xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
The first oncology appt was harder than we imagined it would be with all the facts about what he can expect to happen and how the radiotherapy is going to make him feel was really hard especially as we also got told that it could knock him sideways for six months etc.
Mark here on the forum has a good bio in his profile. Click on his name MarkEL and have a read
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
