Terrified

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So a few weeks ago I woke up with a sore swelling on side of my tongue…did some rinses with mouthwash and seemed to go but has come back…went straight to GP who said it was around 1cm and has referred me on a 2 week wait to Max facial at local hospital…I recently lost my husband to Glioblastoma and I just don’t think I’m strong enough to cope…I have ear pain and jaw pain and I keep feeling my neck for lumps I’m like a woman possessed…my imagination has run riot and I am playing every worse scenario in my head…did the worst thing by going on google..I’m so sorry to bother all you lovely people but I don’t have many people to vent to…Ellie x

  • Thank you so much for your reply hope your husband is getting on well…I’m really trying to stay positive x

  • Its a year since surgery and cant believe how well hes doing. Wishing you all the best my lovely xx

  • Hello Bird67, just saw your post & wanted to sympathise, the waiting to find out is just horrible,  especially after what you've been through already. 

    As others on here have said, even if it is cancer it's usually curable. I just had my 18-month check up after tongue cancer treatment and I'm fine. While I was going through it I found this forum brilliant for info & support, so if you do get bad news please stick with us. In the meantime hang in there, try to keep busy and enjoy the summer though I know it's hard.  Sending love and fingers crossed for you

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story

  • Thank you for reply x

  • So had call from hospital and going in morning to see specialist..is that a good thing as it’s less that a week for referral or do they all know something I don’t..wish I could switch my imagination button off for a bloody while x

  • They have a slot or a cancellation, that’s all. 
    They can’t say it’s serious, they haven’t seen you. 
    Great that you’re getting attention quickly 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you for the voice of reason…I had a better calmer few days after taking your advice x

  • I only saw the Dr on Saturday afternoon for my 2ww referral. Phone call this morning to book biopsy for either Wednesday Thursday or Friday. I panicked until MacMillan nurse said as there was option it just meant there was space .

  • Thank you for reply and reassurance x

  • So saw specialist early this morning max fax and he was lovely I have a geographic and fissured tongue which I’ve had all my life but the lump on the side has gone down but there’s still a very small white patch..he wasn’t overly concerned but has still ordered a biopsy for 2 weeks time..he checked my neck and said it all felt completely normal…he didn’t make me feel like I was wasting his time and said any change should be investigated…so now I just wait to have the biopsy x