So a few weeks ago I woke up with a sore swelling on side of my tongue…did some rinses with mouthwash and seemed to go but has come back…went straight to GP who said it was around 1cm and has referred me on a 2 week wait to Max facial at local hospital…I recently lost my husband to Glioblastoma and I just don’t think I’m strong enough to cope…I have ear pain and jaw pain and I keep feeling my neck for lumps I’m like a woman possessed…my imagination has run riot and I am playing every worse scenario in my head…did the worst thing by going on google..I’m so sorry to bother all you lovely people but I don’t have many people to vent to…Ellie x
Just stay with us and let us know how you get on. Dont forget. Theres always somebody here to chat to. Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Bird67. Please keep off Dr Google now you've found us in here we will all help. It’s so Eastport to frighten yourself with Google at the best its outdated and at the worst many things are incorrect.
The waiting’s the worst part of it all it’s fear of the unknown fear of what’s to come. Try to keep busy I watched numerous mind numbing box sets and crocheted anything to distract yourself.
Any questions pop on we never judge if it’s a rant or to vent your anger it’s fine.
Sorry to hear about Paul cancer sucks but head and neck can ers do respond well to treatment there’s lots of on here years later still living a good life
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi thanks for reply…I am trying my hardest not to stress but I am one of life’s natural worriers…I think I feel worse because what I went through with Paul…I’m not looking at bloody google ever agaiit’s absolutely ruined me lol…I’m trying to not stress over things that I can’t control and have felt a bit better to know that google survival statistics are probably wrong x
Hi I now take the attitude csn I do anythjng about it.if I can’t I no longer stress or worry about I why waste valuable time. Yes hesd snd nrck csncers respond really well to treatment keep that st forefront if your mind. Not all cancers have poor survival rates. Hugs.
I 6 years my tumours was 4 cm and I had 7 lymph nodes I was tonsils. But hsve fruends with front of tongue snd they are still here 3-4 years later living life to max
hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Bird67
I noticed a sore patch on my tongue last Autumn, been there about a month or so I think. Had a routine dental check up, dentist referred me to max-fax.
It was all quite scary how quickly it happened (but all terribly efficient) - biopsy showed it was cancer.
I had surgery in January but fortunately then needed no further treatment. So technically now I have no cancer.
All in not much more than 6 months!
Folks here are great. If you do get a diagnosis of cancer and are on FB then there is a group there I will recommend called Young Tongues.
However in the meantime I would try not to let your brain jump ahead too much and try and look after yourself.
Hi Ellie , only just seen this and stay positive. My hubby had cancer of mandibular and had surgery at Chelmsford and rt at Southend so not a million miles away. The Maxifacial teams are excellent and stick on here as these lovely people are true warriors and am thankful for the support they have always given me x
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