Husbands Cancer Diagnosis

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I find myself on this forum anxious afraid, emotional, not eating not sleeping and generally not dealing with the situation very well. 
my husband has a large mass on his right side of his neck, this started to affect his voice and swallowing obviously this prompted him to go to the doctors that was on the 19th of Jan since then it has been a rollacoster to say the least.

He has had bloods, CT, camera’s down the nose, biopsy and MRI. Over the weekend he developed another swelling on his left side of the jaw which caused his unbearable pain which led to a trip to a&e and admission to head and neck ward. After morphine, steroids and IV antibiotics he’s do ok but still significant swelling.

We attended another consultant appointment on Monday this week and I just hate that stomach churning feeing knowing it’s probably more bad news. The consultant said the new left mass is now likely to be cancer to. They cannot locate the primary the mri showed maybe tonsil area he’s due to have a PET scan in the coming days.

My husband is now booked in for a tonsillectomy, exploration of the throat and possibly more biopsy depending on what they see and a PEG feed insertion followed by chemo as soon as possible. Does all this sound like normal practice and is it normal to have this constant fear inside. I just don’t want to see him in pain and I need to be stronger then I am right now for him and for our three teenager boys.

  • Yes, at least his body will get a chance to recover from the PEG. My husband has not been offered this…apparently they use a different type of feeding tube? I did ask about PEG as I could see that so many people recommended this on the forum. It’s all moving forward which is good x

  • They did find the primary, which was a relief and we now have an appointment with the oncologist  next Wednesday with full results and treatment plan. 

    Great news. Good luck with recovery and next appointments 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I will have a look for Propolis online

    This is what a lot of people have. You put drops of it in water. Word of warning don’t use tap water if your water is hard or the propolis just forms a scum on top. Boil and cool first 

    https://amzn.eu/d/5fA4Hww

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks Dani. Followed the link and popped some in my basket. Anything to soothe and aid.x

  • Good luck with oncologist and welcome to the tonsil cancer club now you know the primary. 

    Hazel c

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Good Afternoon All, I have tried to keep away and process my thoughts but not coping in the slightest. My husbands PET scan results came back as the primary being his right tonsil with spread to multiple lymph nodes, however the PET scan also showed the cancer has spread to lymph nodes in his chest and to the right side of his pelvic bone. We are in turmoil. He is being referred to the oncologist to see if he can have immunotherapy if not they want to start him on chemo to see if they can suppress the spread. He is now classed as palliative and incurable. 
    Mim not sure if I’m even on the right forum anymore and don’t know where to turn. This heart wrenching raw emotional pain is awful. It’s been a whirlwind few weeks and not the out come we were hoping for. 

  • Oh  I am so sorry. Please do ring the support line. Number is at the bottom of my post. You will definitely find somebody to talk to and to steer you towards help. 
    Of course you’re still welcome here but 
    there are a couple of other groups where you might find some extra emotional support. 

    Carers only forum 

     Supporting someone with incurable cancer forum

    hugs. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Oh Bexx85 am sorry to read this. The links that Dani has posted are well worth joining. Of course  stay in here we will all help if we can. 
    Immunotherapy is having  some good  results as well.  Fingers x fir your hubby and of course look after yourself as well 
    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • A little update from our whirlwind few weeks. My husband met his new oncologist this week and his PDL1 came back as positive - just so he can now start immunotherapy - pembrolizumaa his first dose being the 25/03. 

    My husband sees this as a positive as being offered this means there is a chance the cancer will stop spreading or even shrink. I can’t help but constantly worry and thinking our lives are against the clock a little bit. Good days and bad days. Hopefully the side effects won’t be to bad and we can just enjoy life as much as we can without this big black cloud looming over us. Cancer has taken enough away from us already I’m determined to not let it take anymore.

  • A little update from our whirlwind few weeks. My husband met his new oncologist this week and his PDL1 came back as positive - just so he can now start immunotherapy - pembrolizumaa his first dose being the

    That is indeed good news. Keep in touch and let us know how things go if you feel up to it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge