Husbands Cancer Diagnosis

Hi That is positive news immunotherapy is having great results.  I’ve a friend who has just completed 2 years on pembro and hus latest scan is still showing no sign of cancer. He’s slightly different has he did complete chemo and radiotherapy only fir 8 month later to discover spread to his lungs. Pop in and update when you feel up to it. Or if you need a rant we’re always around. Hugs Hazel 

Good evening Bexx85, this is more encouraging news, its lovely to hear your husband is feeling more positive as it will give you all something to aim for in getting the cancer uner control, keep up the positive thoughts. Wishing you and your family all the best, good luck to your husband for the upcoming treatment. Take care.

                                               Chris x

Hi Bexx85,

Yes all what is happening to you and your husband is a normal reaction to the diagnosis and treatment.  Just to let you know you are not alone and feel free to get in touch with people in this community the help and support will help you.

So sorry to hear of your situation. I’m in a similar situation, my husband had treatment but it has come back in the base of his mouth. Not able to operate so now classed as incurable. He’s just started chemo and cetuximab, they haven’t suggested immunotherapy yet. I suppose they want to see what happens with the chemo. It’s so unbearable - I can’t stand seeing him in so much pain and so low. I wake up every morning feeling sick with anxiety. We have two young children and it just all seems so out of control. 

The constant feeling of not knowing what tomorrow will bring and just the not knowing what the future will hold is just unbearable. 

My husband is having his first dose of Pembrolizumab (Keytruda) this Monday and I can’t help but worry about side effects and the most worrying thing of all is if the treatment will control the spread. 

We have 3 teenage boys 17,15,13 and they seem to be coping better than myself at the moment.

I am just hoping once immunotherapy starts I may feel a little different and start living for each day and not worry what the future may hold. x

It is awful isn’t it. We have an 8yr old and a 3 year old. We also lost our 6yr old son nearly 5years ago - I just can’t believe we are in this horrible situation again. I have asked for a referral to the Royal Marsden as I want to be sure there is nothing else that could be tried. Hopefully will hear about that at some point in the next couple of weeks. I feel like I’ve been living in a nightmare I can’t wake up from for the last 6 years. He’s due his 2nd lot of chemo next week, every time I think he’s slightly better something else seems to come up that makes me stressed again! I hope your husband responds well to the immunotherapy. I have all my fingers crossed for you all.

Hi

Everyone reacts differently, but my husband had Pembro for Stage 4 terminal bladder cancer (life expectancy 12 weeks)  about 4 years ago. He found it a very gentle treatment and had no side effects. It shrank the tumour by 50% after two treatments and he went on to have an unexpected total response after 18 months. 

One person's experience isn't predictive of another's, especially with such an innovative treatment, but I hope this gives you some reason to be positive. 

That’s amazing, stories like this give me some hope.

Hi I’m I. The same position with my husband and very similar time frames as you. Tonsillectomy 7th Mar waiting for treatment to start . 
I’ve just joined

Hi I am in the same position and have just joined the forum. Tonsillectomy for husband on 7th Mar and tumour found in left tonsil with spread to lymph. Waiting impatiently for the next phase of treatment. So hard at the moment