I find myself on this forum anxious afraid, emotional, not eating not sleeping and generally not dealing with the situation very well.
my husband has a large mass on his right side of his neck, this started to affect his voice and swallowing obviously this prompted him to go to the doctors that was on the 19th of Jan since then it has been a rollacoster to say the least.
He has had bloods, CT, camera’s down the nose, biopsy and MRI. Over the weekend he developed another swelling on his left side of the jaw which caused his unbearable pain which led to a trip to a&e and admission to head and neck ward. After morphine, steroids and IV antibiotics he’s do ok but still significant swelling.
We attended another consultant appointment on Monday this week and I just hate that stomach churning feeing knowing it’s probably more bad news. The consultant said the new left mass is now likely to be cancer to. They cannot locate the primary the mri showed maybe tonsil area he’s due to have a PET scan in the coming days.
My husband is now booked in for a tonsillectomy, exploration of the throat and possibly more biopsy depending on what they see and a PEG feed insertion followed by chemo as soon as possible. Does all this sound like normal practice and is it normal to have this constant fear inside. I just don’t want to see him in pain and I need to be stronger then I am right now for him and for our three teenager boys.
My husbands sees this all as a positive as things are slowly falling into place.
These things take a lot of coordination and planning but everything is going as it should be. Hugs.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
. I will pass on the message about eye holes. x
Hazel and I both had eyeholes cut. I spent my time on the treatment table looking up at the little gizmo that shapes the beam. Fascinating. But then I’m weird.
The newer masks have pre formed eyeholes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
